Family Matters

Family support is critical to anyone living with an inheritable blood or bleeding disorder. Hear from families like yours in this section of HemAware.

The last time Jennifer Feldman, R.N., saw Derick, * a then 20-year-old with severe hemophilia A, he asked for help...
Anxiety diagnoses are on the rise. Here’s how to recognize symptoms in your child.
Many young children are afraid of needles, and many parents may have anxiety about giving their child infusions, especially in...
HemAware asked parents for their best advice on what has helped them navigate their children’s bleeding disorders in the first...
When Laura Elliott adopted Julian at 5 years old, she knew he had hemophilia, but when she brought him home...
When you’re juggling money to manage the day-to-day of paying bills and running a household, the prospect of projecting your...
Pain is a fact of life for many people with bleeding disorders, who can experience bleeding into joints. Physical therapy...
Ask a Social Worker is a new monthly column featuring questions from the community and answers from members of NHF’s...
The last thing you want to think about is having your child get injured. But there are some hazards in...
The COVID-19 pandemic has affected the lives of all Americans in ways large and small. More than 600,000 Americans have...
If your child has a bleeding disorder, you don’t want to wait until an accident or emergency to figure out...
Michelle Culpepper usually has to drive her son Jayden 45 minutes each way from their home in Farmington, Michigan, to...
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Contact HANDI, NBDF's resource center for additional information on bleeding disorders.