Family Matters

Family support is critical to anyone living with an inheritable blood or bleeding disorder. Hear from families like yours in this section of HemAware.

5 Ways to Injury-Proof Your Home for Your Kids

The last thing you want to think about is having your child get injured. But there are some hazards in...

Family Matters

Three members of the bleeding disorders community.

Living with Bleeding Disorders in the Time of COVID

The COVID-19 pandemic has affected the lives of all Americans in ways large and small. More than 600,000 Americans have...

Family Matters, My Journey, Community in Action

How to Create a Hemophilia Emergency Preparedness Plan for Your Child

If your child has a bleeding disorder, you don’t want to wait until an accident or emergency to figure out...

Family Matters, Taking Charge

Art depicting father and son setting up a telehealth appointment on the computer.

What Parents Should Know About Telehealth Appointments

Michelle Culpepper usually has to drive her son Jayden 45 minutes each way from their home in Farmington, Michigan, to...

Family Matters

Helping Families Empower Themselves

During her more than 30 years as a social worker at the hemophilia treatment center at Children’s Memorial Hospital in...

Family Matters

A distant shot of a farm in the middle of a remote rural area.

Far and Away: Living with Bleeding Disorders in Remote Areas

Families living in remote areas face unique challenges for bleeding disorders care. Learn how a few families have managed—and how...

Family Matters, Taking Charge

How Parents of Children with Bleeding Disorders Can Adapt to Changing Roles

A few years ago, Janet Barone received a phone call from her son, Cameron, that led her to realize her...

Family Matters

What to Do if You Miss Your Child’s Annual Exam

Routine healthcare visits are being held up because of the pandemic, so many parents are missing their children’s annual hemophilia...

Family Matters

Parents’ Guide to CVADs

For many parents of children who are newly diagnosed with hemophilia, those first few months of treatment can seem like...

Family Matters

11 Clues Your Child Is Ready for Self-Infusion

With families staying home during the COVID-19 pandemic, and the hecticness of everyday life toned down, many parents may be...

Family Matters, Taking Charge

Fun Activities to Do with Your Kids at Home

The COVID-19 pandemic has dramatically changed our lives in so many ways, and that’s especially true for families with young...

Family Matters

Nurturing Your Parent Partnership

“Why did you leave that tailgate open?” Kelly Baker, of Bridgeport, Ohio, remembers snapping accusatorily at her husband, Josh. She...

Family Matters