Family Matters

Parents in the Bleeding Disorders Community Share Their Best Advice

HemAware asked parents for their best advice on what has helped them navigate their children’s bleeding disorders in the first...

Family Matters

When Laura Elliott adopted Julian at 5 years old, she knew he had hemophilia, but when she brought him home...

Family Matters

When you’re juggling money to manage the day-to-day of paying bills and running a household, the prospect of projecting your...

Family Matters

Pain is a fact of life for many people with bleeding disorders, who can experience bleeding into joints. Physical therapy...

Taking Charge, Family Matters

Ask a Social Worker is a new monthly column featuring questions from the community and answers from members of NHF’s...

Family Matters, Ask a Social Worker

The last thing you want to think about is having your child get injured. But there are some hazards in...

Family Matters

The COVID-19 pandemic has affected the lives of all Americans in ways large and small. More than 600,000 Americans have...

Family Matters, My Journey, Community in Action

If your child has a bleeding disorder, you don’t want to wait until an accident or emergency to figure out...

Family Matters, Taking Charge

Michelle Culpepper usually has to drive her son Jayden 45 minutes each way from their home in Farmington, Michigan, to...

Family Matters

During her more than 30 years as a social worker at the hemophilia treatment center at Children’s Memorial Hospital in...

Family Matters

Families living in remote areas face unique challenges for bleeding disorders care. Learn how a few families have managed—and how...

Family Matters, Taking Charge

A few years ago, Janet Barone received a phone call from her son, Cameron, that led her to realize her...

Family Matters