Family Matters

Family support is critical to anyone living with an inheritable blood or bleeding disorder. Hear from families like yours in this section of HemAware.

What to Do if You Miss Your Child’s Annual Exam
Routine healthcare visits are being held up because of the pandemic, so many parents are missing their children’s annual hemophilia...
Port for hemophilia treatment
For many parents of children who are newly diagnosed with hemophilia, those first few months of treatment can seem like...
11 Clues Your Child Is Ready for Self-Infusion
With families staying home during the COVID-19 pandemic, and the hecticness of everyday life toned down, many parents may be...
Fun Activities to Do with Your Kids at Home
The COVID-19 pandemic has dramatically changed our lives in so many ways, and that’s especially true for families with young...
Couple walking in winter landscape
“Why did you leave that tailgate open?” Kelly Baker, of Bridgeport, Ohio, remembers snapping accusatorily at her husband, Josh. She...
How to Help Your Child with a Bleeding Disorder Cope with Anxiety and Stress in the Pandemic
The COVID-19 pandemic has many families on edge right now. Jobs are being cut, routines are disrupted, and with social...
Young woman pushes one of three volume-control type sliders on her shirt toward the positive side and away from the negative.
Almost all teenagers and young adults wrestle at some point with the pressure to conform to an “ideal” body type...
Keeping Up Your Kid's Routine
Change is hard for everyone, but addressing it helps smooth the road ahead.
6 Things to Know About Braces and Bleeding Disorders
Getting braces or other orthodontic devices such as a retainer is a rite of passage for millions of kids (and...
Teen girl looking at smartphone in a room with window open.
Bullying has moved beyond the schoolyard to the digital playground. Cyberbullying, the use of technology to threaten, intimidate, harass, embarrass...
How to Help Your Child Handle Unpredictability
What parents of kids with bleeding disorders can do to help them cope with unexpected changes.
 Back-to-School Resources for Parents of Kids with Bleeding Disorders
Ease your anxieties and help ensure school officials are prepared to support your child.
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Need Info? Ask NHF!
Contact HANDI, NHF's resource center for additional information on bleeding disorders.