Family Matters

A distant shot of a farm in the middle of a remote rural area.

Far and Away: Living with Bleeding Disorders in Remote Areas

Families living in remote areas face unique challenges for bleeding disorders care. Learn how a few families have managed—and how...

Family Matters, Taking Charge

How Parents of Children with Bleeding Disorders Can Adapt to Changing Roles

A few years ago, Janet Barone received a phone call from her son, Cameron, that led her to realize her...

Family Matters

What to Do if You Miss Your Child’s Annual Exam

Routine healthcare visits are being held up because of the pandemic, so many parents are missing their children’s annual hemophilia...

Family Matters

Parents’ Guide to CVADs

For many parents of children who are newly diagnosed with hemophilia, those first few months of treatment can seem like...

Family Matters

11 Clues Your Child Is Ready for Self-Infusion

With families staying home during the COVID-19 pandemic, and the hecticness of everyday life toned down, many parents may be...

Family Matters, Taking Charge

Fun Activities to Do with Your Kids at Home

The COVID-19 pandemic has dramatically changed our lives in so many ways, and that’s especially true for families with young...

Family Matters

Nurturing Your Parent Partnership

“Why did you leave that tailgate open?” Kelly Baker, of Bridgeport, Ohio, remembers snapping accusatorily at her husband, Josh. She...

Family Matters

How to Help Your Child with a Bleeding Disorder Cope with Anxiety and Stress in the Pandemic

The COVID-19 pandemic has many families on edge right now. Jobs are being cut, routines are disrupted, and with social...

Family Matters

Young woman pushes one of three volume-control type sliders on her shirt toward the positive side and away from the negative.

Promoting Body Positivity in Teens

Almost all teenagers and young adults wrestle at some point with the pressure to conform to an “ideal” body type...

Family Matters

Keeping Up Your Kid’s Routine During a Divorce Or Other Family Changes

Change is hard for everyone, but addressing it helps smooth the road ahead.

Family Matters

6 Things to Know About Braces and Bleeding Disorders

Getting braces or other orthodontic devices such as a retainer is a rite of passage for millions of kids (and...

Taking Charge, Family Matters

Teen girl looking at smartphone in a room with window open.

Bullying Goes High-Tech

Bullying has moved beyond the schoolyard to the digital playground. Cyberbullying, the use of technology to threaten, intimidate, harass, embarrass...

Family Matters