Family Matters

Family support is critical to anyone living with an inheritable blood or bleeding disorder. Hear from families like yours in this section of HemAware.

Mom and son

Talking to Teens and Preteens About Sex and Intimacy

Kids should hear the facts about their bodies, sex and relationships from a trusted source—their parents.
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Family Matters
Kids jumping into a lake off of a floating dock

Going Phone-Free at Bleeding Disorders Camp

Ding-dong! Ding-dong! The sound of a ringing bell means another camper has reached the top of the climbing tower at...
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Family Matters
5 Films that Capture the History of the Bleeding Disorders Community

5 Films that Capture the History of the Bleeding Disorders Community

If you or a family member is newly diagnosed with a bleeding disorder, watching films and videos can be a...
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Family Matters
HTC nurse comforts young boy

5 Ways to Transition to a New HTC Nurse

If you have a child with a bleeding disorder, the relationship that your family forms with a hemophilia treatment center...
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Family Matters
A roundup of helpful books about hemophilia and other bleeding disorders

7 Must-Read Books for Newly Diagnosed Patients and Their Families

A roundup of helpful books about hemophilia and other bleeding disorders.
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Family Matters
Build a Bleeding Disorder Support Network

Build a Bleeding Disorder Support Network

A solid team can ease stress for parents.
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Family Matters
Managing Bleeding Disorders: Children at School

Managing School and a Bleeding Disorder

How to ensure children get the support they need.
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Family Matters
Male doctor shaking hands with male patient

How to Get the Most out of an HTC Visit

Be your own or your child’s best advocate
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Family Matters
Couple facing doctor

What to Expect at a Genetic Counseling Meeting

If you have hemophilia or another bleeding disorder in your family tree, meeting with a genetic counselor is key.
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Family Matters
What parents say—and don’t say—can make a big difference in how children handle their condition

Talking to Kids About Bleeding Disorders

Depending on when your child is diagnosed with a bleeding disorder, your first conversations with him or her about the...
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Family Matters
Advice for Hispanic families in the bleeding disorders community

Hispanic Families in the Bleeding Disorders Community

Solutions for the biggest challenges.
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Family Matters
Confusion is normal, but your child will be OK

Bleeding Disorders in Children: 10 Things Parents Should Know

Confusion is normal, but your child will be OK
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Family Matters
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Contact HANDI, NBDF's resource center for additional information on bleeding disorders.
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