Family Matters

Family support is critical to anyone living with an inheritable blood or bleeding disorder. Hear from families like yours in this section of HemAware.

For young children, their first wobbly tooth is a sure sign they’ve officially earned big kid status. For parents of...
If you have school-age children (or you’re about to), you may have heard of 504 plans and IEPs. But you...
If you have a child with a bleeding disorder, the teen years can be challenging. It’s a time when adolescents...
Kids should hear the facts about their bodies, sex and relationships from a trusted source—their parents.
Ding-dong! Ding-dong! The sound of a ringing bell means another camper has reached the top of the climbing tower at...
If you or a family member is newly diagnosed with a bleeding disorder, watching films and videos can be a...
If you have a child with a bleeding disorder, the relationship that your family forms with a hemophilia treatment center...
A roundup of helpful books about hemophilia and other bleeding disorders.
A solid team can ease stress for parents.
How to ensure children get the support they need.
Be your own or your child’s best advocate
If you have hemophilia or another bleeding disorder in your family tree, meeting with a genetic counselor is key.
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Need Information about Bleeding Disorders?
Contact The Neil Frick Resource Center (NFRC)