Life

Before you post about your bleeding disorder, keep this advice in mind.
When your joint pain goes beyond what’s typical, specialized care may be needed.
Any form of extended caregiving can be taxing. That’s why it’s important for caregivers—and especially ones with a bleeding disorder—to...
Confusion is normal, but your child will be OK
Doing your homework before starting the transfer process is key, especially when you have a bleeding disorder.
Kids who’ve had infusion treatments for a few years might be ready to start infusing their own factor. This process...
In easily understood language, Raising a Child with Hemophilia covers such topics as medical treatment, genetic transmission, child development, consumer...
Fathers who share a bleeding disorder with their daughters play an important role in their lives.
Following the ABCs can help parents and caregivers ease the pain and anxiety of infusions.
If you have a brother or sister with a bleeding disorder, you probably have a lot of questions.
“When Jorge was diagnosed, our family was diagnosed,” Cristina says. “We were going to figure this out together.”
Little about the growing-up experience is easy for children or parents. If you’re a young adult with a bleeding disorder...
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Need Information about Bleeding Disorders?
Contact The Neil Frick Resource Center (NFRC)