Taking Charge

Taking Charge

Take charge and become your best self-advocate! Get tips and tricks here.

When it comes to chronic and life-changing medical conditions, better care starts with better research. Until a few years ago...
People with hemophilia know that it requires effort and diligence to maintain a healthy lifestyle while living with a bleeding...
When people with hemophilia develop an inhibitor—about 1/3 to 1/5 of people with severe hemophilia A and 1% to 4%...
It’s 2022 and COVID-19 is, unfortunately, still around. Of course, things have gotten better, but the pandemic still trudges along...
Eat right. Exercise. Get enough sleep. You know what’s needed to keep your body healthy as you age. But what...
Pain is a fact of life for many people with bleeding disorders, who can experience bleeding into joints. Physical therapy...
If your child has a bleeding disorder, you don’t want to wait until an accident or emergency to figure out...
Bleeding disorders frequently rank among the highest-cost conditions, largely because of treatment costs. While patients are exposed to some of...
More than 40% of Americans have delayed or avoided medical care during the COVID-19 pandemic, according to the Centers for...
Families living in remote areas face unique challenges for bleeding disorders care. Learn how a few families have managed—and how...
Carter Lantz, who was diagnosed with hemophilia A at age 2, learned to self-infuse factor at a hemophilia camp when...
Because we all need a break from Zoom.
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Contact HANDI, NBDF's resource center for additional information on bleeding disorders.