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6 Facts About Women and Hemophilia
1. Women with hemophilia are often undiagnosed or misdiagnosed Historically hemophilia was thought of as a “man’s disease,” and for...
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Women's Bleeding Disorders
6 datos sobre las mujeres y la hemofilia
1. Las mujeres con hemofilia a menudo no son diagnosticadas o son mal diagnosticadas Históricamente, se pensaba que la hemofilia...
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Women's Bleeding Disorders
Genetic Mutations 101
The story of what causes bleeding disorders starts with our body’s effort to write instructions on how it will develop...
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Hemophilia A&B
Glanzmann’s Thrombasthenia and Bernard-Soulier Syndrome
Most bleeding disorders are relatively rare. Even the most common bleeding disorder, von Willebrand disease, affects just 1 out of...
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Rare Bleeding Disorders
Trombastenia de Glanzmann y síndrome de Bernard-Soulier
La mayoría de los trastornos hemorrágicos son relativamente poco frecuentes. Incluso el trastorno hemorrágico más común, la enfermedad de von...
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Rare Bleeding Disorders
Swimming and Hemophilia
Swimming is a great exercise for people with hemophilia and other bleeding disorders.
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Hemophilia A&B
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Fitness & Nutrition
DDAVP for von Willebrand Disease
“One and two and flip.” Lilliam Bervis thinks out loud, concentrating on her partner’s precise and rhythmic steps as the...
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Von Willebrand Disease
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Women's Bleeding Disorders
Sex Talk
Discussing intimacy issues when you're a woman with a bleeding disorder.
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Von Willebrand Disease
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Women's Bleeding Disorders
Off to College with a Bleeding Disorder
Rachel Miller, 21, who has von Willebrand disease, attended two years of community college and lived at home before enrolling...
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Generation Next
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Family Matters
6 Ways to Help Your Kid Move to Adult Care
Matt Olovich and his parents share how they made the transition.
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Family Matters
6 maneras de ayudarle a su hijo a transferirse a la atención para adultos
Matt Olovich tenía alrededor de 11 años de edad cuando asistió a un campamento para trastornos hemorrágicos en su estado...
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Family Matters
Health Insurance Tips for the Bleeding Disorders Community
Picking the right health insurance plan and navigating the issues that arise can be difficult, time-consuming and oftentimes frustrating processes—especially...
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Insurance
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Need Information about Bleeding Disorders?
Contact The Neil Frick Resource Center (NFRC)
Contact NFRC