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Hematologist at NIH

NIH Appoints Director of the Division of Blood Diseases and Resources

The appearance of HIV/ AIDS in the bleeding disorders community was the defining moment in the life of W. Keith...

Community in Action, Researcher Profiles

A Fond Farewell to Four Veteran Chapter Directors

A Fond Farewell to Four Veteran Chapter Directors

The National Hemophilia Foundation’s network of chapters plays an immensely important role in the bleeding disorders community. Chapters provide programs...

Chapter Roundup

Updated NHF guidelines aim to improve emergency care

Updated NHF Guidelines Aim to Improve Emergency Care

In September 2017, the National Hemophilia Foundation’s Medical and Scientific Advisory Council (MASAC) adopted updated guidelines for the treatment of...

NBDF in Action

Organ Transplants in HIV-Positive People

Update, 7/29/2013: The Senate bill now has 14 co-sponsors and passed in the Senate on June 17, 2013. On July...

HIV, Surgery & Transplants

NHF-Shire Clinical Fellow Profile: Shawn Jobe, MD, PhD

HemAware is conducting a series of interviews with recipients of the NHF-Shire Clinical Fellowship. It is funded through the generous...

Researcher Profiles

The Emotional Toll of Mass Shootings

The Emotional Toll of Mass Shootings

Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social...

Ask a Social Worker

Gene Therapy for Hemophilia A: What You Need to Know

Gene Therapy for Hemophilia A: What You Need to Know

In the summer of 2023, the U.S. Food and Drug Administration (FDA) approved ROCTAVIAN (valoctocogene roxaparvovec-rvox), a gene therapy for...

Blood Safety

7 Ways to Manage Heavy Periods

7 Ways to Manage Heavy Periods

Learn about the “lasagna method” and other tips.

Women's Bleeding Disorders, Taking Charge

Marion Koerper, MD

Community Heroes: Marion Koerper, MD

On the first day of her pediatric internship at San Francisco General Hospital, Marion Koerper, MD, noticed a 4-year-old boy...

Community in Action

How to Keep Summer Activities Safe for Kids with Bleeding Disorders

How to Keep Summer Activities Safe for Kids with Bleeding Disorders

It’s summertime, and kids are out of school and excited to have fun in the great outdoors. After a year...

Fitness & Nutrition

Boyfriend and girlfriend

Discussing Your Bleeding Disorder with Your Boyfriend

Dating is always fraught with anxiety. For women with bleeding disorders, the nervousness is compounded by the inevitability of “The...

Von Willebrand Disease, Taking Charge

Graham Koch

The Great Race

In each issue of HemAware , we “Take 5” with people in the bleeding disorders community and spotlight their accomplishments...

My Journey

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)