Search Stories | HemAware

Bleeding Disorders in Pop Culture

Having a rare disease like hemophilia means you don’t often get to see people who share your disease portrayed in...

A front shot of the Supreme Court building.

Safeguarding an Essential Treatment for Heavy Periods

In June, when the Supreme Court overturned Roe v. Wade and ended the constitutional right to abortion, women’s health advocates...

Women's Bleeding Disorders

Gene Therapy Candidates Face ‘Once in a Lifetime’ Choice

You only get one chance. Cutting-edge gene therapies that show the most promise for a permanent solution to hemophilia rely...

Novel Technologies

Honoring the Life of a Remarkable Young Man with Hemophilia

Growing up with severe hemophilia A in the 1970s and ’80s, Jason Fulton never let his diagnosis get in the...

My Journey

Osteoporosis In Kids With Bleeding Disorders

Running, jumping, walking and weightlifting have something in common—they build bone density and strength. Hematologists now recommend some degree of...

Family Matters

Bleeding disorders community is starting to develop a larger Internet presence

NHF Expands Online Offerings

Being diagnosed with a bleeding disorder can spark a lifetime of questions. As treatments, research, medical protocols and healthcare policy...

Advocacy, Advocacy

Doctor looking out from behind lab shelving

Above and Beyond

“THINK BETTER. THINK BIGGER. THINK BEYOND.” These are the themes Steven W. Pipe, MD, laid out in summer 2015 as...

Advocacy

Paddle Power

Renee Embry has a platelet dysfunction and Ehlers-Danlos syndrome, but that doesn’t stop her from getting out on the water.

Fitness & Nutrition

Eating Healthy

Did you know that there are 55 nutrients that your body needs every day? That’s a lot to keep track...

HemAware Junior

Woman with abdominal pain, grimacing and gripping stomach area

Ovarian Cysts

Few medical conditions mirror the pain of a burst appendix. But women with a ruptured ovarian cyst say it comes...

Women's Bleeding Disorders, Women's Bleeding Disorders

Summer Safety

It’s easy to feel cooped up in school all day. That’s why summer is so great! It’s warm, you have...

HemAware Junior

When Donations Save Lives

Living with a bleeding disorder in a developing country poses unique hardships for patients. “When I was 12 years old...

Global Focus