Search Stories | HemAware

Gene Therapy Candidates Face ‘Once in a Lifetime’ Choice

You only get one chance. Cutting-edge gene therapies that show the most promise for a permanent solution to hemophilia rely...

Novel Technologies

Osteoporosis In Kids With Bleeding Disorders

Running, jumping, walking and weightlifting have something in common—they build bone density and strength. Hematologists now recommend some degree of...

Family Matters

Bleeding disorders community is starting to develop a larger Internet presence

NHF Expands Online Offerings

Being diagnosed with a bleeding disorder can spark a lifetime of questions. As treatments, research, medical protocols and healthcare policy...

Advocacy, Advocacy

Doctor looking out from behind lab shelving

Above and Beyond

“THINK BETTER. THINK BIGGER. THINK BEYOND.” These are the themes Steven W. Pipe, MD, laid out in summer 2015 as...

Advocacy

Paddle Power

Renee Embry has a platelet dysfunction and Ehlers-Danlos syndrome, but that doesn’t stop her from getting out on the water.

Fitness & Nutrition

Eating Healthy

Did you know that there are 55 nutrients that your body needs every day? That’s a lot to keep track...

HemAware Junior

Woman with abdominal pain, grimacing and gripping stomach area

Ovarian Cysts

Few medical conditions mirror the pain of a burst appendix. But women with a ruptured ovarian cyst say it comes...

Women's Bleeding Disorders, Women's Bleeding Disorders

Summer Safety

It’s easy to feel cooped up in school all day. That’s why summer is so great! It’s warm, you have...

HemAware Junior

When Donations Save Lives

Living with a bleeding disorder in a developing country poses unique hardships for patients. “When I was 12 years old...

Global Focus

The Right Fit

Earlier this year, Wayne Cone joined a gym in his hometown of Jacksonville, Florida. Cone, who has severe hemophilia A...

Fitness & Nutrition

Sarah Watson, right, with her sister, Ashley Chan, and their kids.

Managing Mild Hemophilia: Be Prepared for the Unexpected

Careful monitoring and prompt treatment are essential.

Hemophilia A&B, Women's Bleeding Disorders

Coping with Family Stress

Stress. No one wants it, but everyone has it. And when you add a chronic illness like a bleeding disorder...

Family Matters