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Workshop Examines Emerging Hemophilia Therapies
A workshop on new bleeding disorders therapies provided insights on improved clotting factors, immune responses to new treatments and gene...
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Novel Technologies
Bleeding Disorders and Your Online Family Health Portrait
For this family portrait, you don’t even need a camera. All you need is a computer and some health history...
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Family Matters
Manage Hemophilia with a Personal Health Record
When Michael Schultz was 10 years old, his parents put him in charge of self-infusions to manage his moderate hemophilia...
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Hemophilia A&B
,
Taking Charge
FDA Recommends Screening Blood Products for Parvovirus B19
The US Food and Drug Administration (FDA) issued a recommendation in July 2009 that makers of plasma-derived products, which include...
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Blood Safety
Hemophilia Genotyping for All
Learn more in this issue's cover article, " What's Your Genotype?"
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Hemophilia A&B
Study: High-Impact Activity Doesn't Increase Joint Bleeds
“PF Flyers make you run faster and jump higher,” boasted an old advertisement for Keds ® sneakers. Turns out those...
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Hemophilia A&B
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Fitness & Nutrition
Two Medications Approved For Von Willebrand Disease, Menorrhagia
In late 2009, the US Food and Drug Administration (FDA) approved two new medications of interest to the bleeding disorders...
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Von Willebrand Disease
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Women's Bleeding Disorders
What The Healthcare Reform Means To Hemophilia Patients
While national healthcare reform passed in March, implementing it will occur in stages. The legislation is detailed and has many...
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Advocacy
,
Insurance
Q&A: Brian Ward, president of Hemophilia and Bleeding Disorders of Alabama
In each issue of HemAware , we take a look at how local NHF chapters and associations are making a...
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Advocacy
,
Chapter Roundup
The Benefits Of Knowing Your Genotype
“Missense” and “nonsense” make sense at the molecular level. These are genetic mutations that cause hemophilia. Knowing your genotype, or...
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Hemophilia A&B
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Carriers
Making Adherence a Routine
Read about the iPhone app Hemolog. Donna LeBrun has a full-time job as a field service representative for a home...
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Family Matters
A Global Effort to Treat Bleeding Disorders
A child and his mother travel for a week by bus in Peru to visit a treatment center. A young...
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Global Focus
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Need Information about Bleeding Disorders?
Contact The Neil Frick Resource Center (NFRC)
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