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The Power of Summer Camps for Kids with Bleeding Disorders

The National Hemophilia Foundation (NHF) celebrates its 75th anniversary in 2023. Throughout the year, HemAware.org will be commemorating this special...

75th Anniversary, Community in Action

Well-Grounded Guideline

The comprehensive care model is ideal for people with hemophilia.

Hemophilia A&B, Von Willebrand Disease

Bringing Up Baby

When Robin Bratton met her future husband, Val D. Bias, in the 1990s, she was impressed by his kindness and...

Family Matters

Headshots of 6 women who have shared their stories about dealing with hemophilia.

How Women in the Bleeding Disorders Community Are Fighting for Change

For women and girls with bleeding disorders, life is often a struggle to be seen and heard by medical professionals...

Women's Bleeding Disorders, My Journey

Emotional Protection

Actor and comedian Robin Williams’ suicide in August helped shine a much-needed spotlight on the prevalence of depression and other...

Family Matters

VWD Summit Highights

Although they outnumber people with hemophilia by a large margin, those with von Willebrand disease (VWD) feel practically invisible at...

Women's Bleeding Disorders, Women's Bleeding Disorders

The Banks family outside Rep. Jim Hines' office in Washington, DC

A Washington Days Diary

Advocate Jennifer Banks and her family's experience at NHF 2019 Washington Days.

Advocacy

For People with Bleeding Disorders, Adherence Is Still a Problem

When Sean Pentz was growing up, his mother made sure he received his infusions of clotting factor three times a...

Taking Charge

Healthcare Reform Passes

For the latest updates on the passage of healthcare reform, see the NHF Web site. See also: Hemophilia and Healthcare...

Advocacy

Medical IDs Could Save Your Life

For Robyn Salk, Saturday night is a time to dress up—perhaps a sequined blouse paired with slick, knee-high boots wrapped...

Family Matters

Information for All Providers

When a person with hemophilia seeks medical care outside his or her hemophilia treatment center (HTC), most likely the physician...

Advocacy

Traveling with Medication

Hopping a plane can be stressful nowadays, as you deal with long check-in lines, baggage fees and enhanced security. But...

Family Matters