Search Stories | HemAware

For People with Bleeding Disorders, Adherence Is Still a Problem

When Sean Pentz was growing up, his mother made sure he received his infusions of clotting factor three times a...

For the latest updates on the passage of healthcare reform, see the NHF Web site. See also: Hemophilia and Healthcare...

Advocacy

For Robyn Salk, Saturday night is a time to dress up—perhaps a sequined blouse paired with slick, knee-high boots wrapped...

Family Matters

When a person with hemophilia seeks medical care outside his or her hemophilia treatment center (HTC), most likely the physician...

Advocacy

Hopping a plane can be stressful nowadays, as you deal with long check-in lines, baggage fees and enhanced security. But...

Family Matters

“I wish I had hemophilia.” A statement like that may sound startling, but it’s not unusual for brothers and sisters...

Family Matters, Family Matters

Contrary to popular belief, men do like to talk. It turns out that men in the bleeding disorders community have...

See also: NHF Community Meets with Congress.

Advocacy

Jacob Walker was curled up in bed, holding his abdomen. “I get blood clots the same way some people get...

Pain Management, Alternative Treatments

In July 2011, a series of contradictory blood tests on their infant son, Ty, played with the emotions of Joni...

Family Matters

It may be small, but it can bring a Navy SEAL to his knees. With its spasms of pain, a...

Taking Charge, Fitness & Nutrition

Ronia Cole, 52, of Redford Township, Michigan, has lived with a bleeding disorder since she was a toddler. “I’d take...