Search Stories | HemAware

A Fond Farewell to Four Veteran Chapter Directors

The National Hemophilia Foundation’s network of chapters plays an immensely important role in the bleeding disorders community. Chapters provide programs...

Chapter Roundup

Treatment Breakthroughs

The marketing terms “new and improved” and “longer lasting” are not limited to the latest brand of chewing gum. They...

Novel Technologies, Hemophilia A&B, Rare Bleeding Disorders, Von Willebrand Disease

Excused Absences

After Jonathan Seaman began missing day after day of first grade because of inhibitor complications and hospital stays, his teacher...

Family Matters

Speed Racer

Mary Ellen Ciganovich, 59, works out nearly every day, but for her, exercise is anything but routine. She engages in...

Mind & Body, Fitness & Nutrition, Taking Charge

Game On!

Elbows. Knees. Ankles. All those bendy, bony parts of your body let you run, jump and skip. And sometimes it’s...

Family Matters

An Ounce of Prevention

Ryanne Radford had been getting an annual Pap test for about eight years without any complications. But after a Pap...

Generation Next, Adults & Aging, Mind & Body, Women's Health, Women's Bleeding Disorders

Wheels in Motion

In each issue of HemAware , we “Take 5” with people in the bleeding disorders community and spotlight their lives...

Generation Next, Fitness & Nutrition, My Journey

Bleeding Disorder Books Educate, Inform and Inspire

A doctor who wrestles with the guilt of infecting patients with HIV, and a survivor who overcame his anger to...

Family Matters

Ear Tubes for Children With Bleeding Disorders

Fever. Fussiness. Feeling of fullness in the ear. Ear infections can cause pain and problems for children. While most acute...

Family Matters

Be Prepared: Boy Scouting and Hemophilia

When he was 10, Dustin Huerta’s severe hemophilia A caused three to four bleeds a week and often sidelined him...

Family Matters

Jeff Salantai (left), Alex Hill and Eric Hill on the summit of Mt. Kilimanjaro i

Sky’s the Limit

HemAware “ Takes 5” with people in the bleeding disorders community and spotlights their efforts with just five questions. Here...

My Journey

New Hepatitis C Drugs Mark Major Advancement

The release of two new oral medications, Incivek TM and Victrelis TM, in May 2011 marks another significant advance in...

Novel Technologies, Hepatitis C