Search Stories | HemAware

Hemophilia Pseudotumors 101

When Murali Pazhayannur slipped while getting into a rickshaw during a Calcutta monsoon, he had no inkling he’d still be...

Hemophilia A&B, Rare Bleeding Disorders

Hemophilia and von Willebrand disease (VWD) are not well-known outside the bleeding disorders community. But thanks to the spotlight on...

Advocacy

Head bleeds, or cranial hemorrhages, can be a terrifying prospect for parents of children with a bleeding disorder. The cause...

Family Matters

For parents of a child newly diagnosed with a bleeding disorder, medical costs and insurance coverage instantly become big concerns...

Insurance

Betty Jane Henry died at her home in Wellington, Florida, on Sunday, September 5, at the age of 93. She...

Advocacy, Community in Action

“Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing...

Advocacy

The National Hemophilia Foundation (NHF) is developing “ Steps for Living,” a comprehensive, interactive Web site. It will provide in-depth...

In each issue of HemAware , we take a look at how local NHF chapters and associations are making a...

Chapter Roundup

Despite hemophilia’s very visible symptoms—bleeding and bruising— the disorder has been a hidden one for a long time.

Hemophilia A&B, Advocacy

Each day, Vaibhav Nehra walks through the streets of New Delhi, India, intent on making it to his class on...

Global Focus

Amr Elbeshir was bored with going to the gym and lifting weights. He wanted something that would exercise his mind...

Good job! Nothing compares to that look of pride on Mom’s or Dad’s face when you have worked hard and...

HemAware Junior