Rare Bleeding Disorders

Why Is Hemophilia Called the Royal Disease?

When it comes to the history of hemophilia, there’s a lot to unpack. The public didn’t even have a name...

Most bleeding disorders are relatively rare. Even the most common bleeding disorder, von Willebrand disease, affects just 1 out of...

The blood clotting process is a multistep activity known as coagulation. When the entire coagulation process works properly, blood holds...

Hemophilia A&B, Von Willebrand Disease, Rare Bleeding Disorders

When people have bleeding disorders, their blood fails to clot like it should when they have external or internal bleeding...

Hemophilia A&B, Von Willebrand Disease, Rare Bleeding Disorders, Taking Charge

People with rare bleeding disorders face challenges, but increasingly they are facing them together.

It's the most common type of bleed for people with hemophilia.

Hemophilia A&B, Rare Bleeding Disorders, Von Willebrand Disease

A number of rare bleeding disorders require specialized care.

FDA approves new drugs for VWD, hemophilia A and HIV-1

Two women’s experiences with factor X deficiency.

Coagadex is the first FX concentrate available.

For the past 10 years, people with hemophilia and their family members and caregivers have come together for a three-day...

Hemophilia A&B, Rare Bleeding Disorders

Patients with factor XIII (FXIII) deficiency, the rarest bleeding disorder—occurring in 1 in 5 million births—have a new treatment option...