HemAware

Featured On HemAware

Why Has Gene Therapy for Hemophilia Been Slow to Catch On?

After years of excitement about a possible “one-and-done” treatment, gene therapy uptake has been slower than expected. Here’s why.
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OhmBody: A New Approach to Therapy for Heavy Menstrual Bleeding

The wearable wellness device works without medications or hormones and complements other bleeding disorder treatments.
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How to Choose the Right Hemophilia Treatment Options for You

In a rapidly changing hemophilia treatment landscape, shared decision-making helps patients and providers choose the option that fits best.
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How to Choose the Right Hemophilia Treatment Options for You

It took years for Julie Schiffmacher to be diagnosed with von Willebrand disease. Now she’s turning that experience into advocacy.

My Journey

These two bleeding disorders share some similarities but are also unique in significant ways. Here’s what you need to know.

Hemophilia A&B, Von Willebrand Disease

Understanding more about your period can help you have greater control over your health, especially when managing a bleeding disorder.

In March, bleeding disorders advocates nationwide donned their red ties and raised a record-setting amount of money during the National...

Forget New Year’s, anytime is a good time to make a resolution to get fitter. As you’ve heard over and...

If you have school-age children (or you’re about to), you may have heard of 504 plans and IEPs. But you...

Family Matters, Advocacy

If you have a child with a bleeding disorder, the teen years can be challenging. It’s a time when adolescents...

Family Matters

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)