HemAware

Featured On HemAware

What Is Anti-TFPI? This New Treatment Could Change Hemophilia Care

This rebalancing agent can help people with hemophilia A or B — with or without inhibitors — to better control bleeding.
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What Is Anti-TFPI? This New Treatment Could Change Hemophilia Care
Von Willebrand Disease Treatment: What’s New and Next?

Advances include improved access to prophylaxis, multiple subcutaneous drugs in development, and research looking at better ways to personalize treatment.
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Von Willebrand Disease Treatment: What’s New and Next?
Ask a Social Worker: How Can I Handle Constant Upsetting News?

Practical ways to stay grounded when constant news and uncertainty feel overwhelming.
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Recent Articles

Brian Andrew: Working Toward a Brighter Future

Learn how one leader’s unexpected cause has turned into a passion for service.

Community in Action

Waylon Page: “Kids Can Make a Difference”

Diagnosed with a rare bleeding disorder at age 4, Waylon Page has been a powerful advocate and change maker.

My Journey

The Bleeds Wouldn’t Stop – But This Patient Didn’t Give Up

“I wanted to live my life like there was nothing wrong, but the fear was always there.”

Should People with Hemophilia Get the COVID-19 Vaccine?

When the Pfizer-BioNTech and Moderna COVID-19 vaccines became publicly available in December 2020, healthcare professionals around the country called them...

Novel Technologies

Bleeding Disorders Advocacy: Infusing the World with Knowledge

Nickie Fernandez remembers the first time he and his family met with their state senator in Salem, Oregon, in 2015...

Advocacy

Picture of a dog in a superhero costume.

The Many Health Benefits of Pet Ownership

If you struggle to maintain the motivation to exercise, a four-legged friend, especially a dog, can be the nudge you...

Fitness & Nutrition

Art depicting father and son setting up a telehealth appointment on the computer.

What Parents Should Know About Telehealth Appointments

Michelle Culpepper usually has to drive her son Jayden 45 minutes each way from their home in Farmington, Michigan, to...

Family Matters

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)

Contact NFRC