In-depth profiles and stories about people in the bleeding disorders community. Nothing But Net Federico Parres, a sophomore at Damien High School in LaVerne, CA, has severe hemophilia A and is part of Team... Read More My Journey Untapped ‘Friend-Raising’ Abilities Driven by love for her young grandson, Trish Griffith, of Knoxville, Tennessee, turned her network of friends and family members... Read More My Journey Bleeding Disorders Community Pays Tribute John Indence, NHF’s vice president for Marketing and Communications, passed away suddenly on Friday, May 20, 2016. He was 52... Read More Community in Action Spreading the Word: HemosUnite Podcast In each issue, we spotlight a member of the bleeding disorders community. Here, we spotlight Matti Vann, the woman behind... Read More My Journey Washington Days Has Volunteers Seeing Red The scene at Washington Days, the National Hemophilia Foundation’s (NHF) annual advocacy event, is characterized by a sense of excitement... Read More Community in Action California Children’s Hospital Hosts Genetics Day On a rainy Saturday in January, 26 people arrived at Valley Children’s Hospital (VCH) in Madera, CA, for one reason... Read More Community in Action WFH World Congress 2016 Hosted by the National Hemophilia Federation (NHF), the upcoming World Federation of Hemophilia (WFH) 2016 World Congress is expected to... Read More Global Focus Singing From His Heart In each issue of HemAware , we spotlight someone in the bleeding disorders community. This issue, we speak with LaRon... Read More My Journey Fun and Fundraising “What’s So Bloody Funny?” NHF’s evening of comedy, brought together established and up-and-coming performers to the Gotham Comedy Club in... Read More NBDF in Action Inhibitor Education Summits For more than 10 years, the National Hemophilia Foundation (NHF) has been committed to providing specialized educational opportunities to members... Read More NBDF in Action An Advocate and Winner Tammy Jones learned she had a bleeding disorder when her youngest daughter was diagnosed at age 14. “She started having... Read More Community Pulse Rare Finds They’re the rarest of the rare: bleeding disorders like platelet storage pool disorder and factor XIII deficiency that affect only... Read More Community in Action Load More
