The First Years After Your Child’s Diagnosis When Mike and Vanessa Sidwell’s son Jaiden was diagnosed with severe hemophilia A four days after birth, the couple was... Read More Family Matters A Second Diagnosis Parents of children with hemophilia and other bleeding disorders are very familiar with the routines and challenges that come with... Read More Hemophilia A&B, Von Willebrand Disease, Family Matters Lucky Dog Good job! Nothing compares to that look of pride on Mom’s or Dad’s face when you have worked hard and... Read More HemAware Junior Factor VII Product Treats Brain Hemorrhages in Inhibitor Patients Head bleeds, or cranial hemorrhages, can be a terrifying prospect for parents of children with a bleeding disorder. The cause... Read More Family Matters A Dark Cloud When Robin* was 8 years old, his life started becoming overwhelming. “Everything started coming in on him at once,” says... Read More Family Matters Burnout Breakthrough When you’re the primary caregiver for someone with a bleeding disorder, sometimes it seems like just one more thing will... Read More Family Matters Safely Storing Factor at Home Starting a home-care regimen for hemophilia and other bleeding disorders can be a life-changing experience for families. Self-infusion, prophylactically or... Read More Hemophilia A&B, Von Willebrand Disease, Family Matters Making Adherence a Routine Read about the iPhone app Hemolog. Donna LeBrun has a full-time job as a field service representative for a home... Read More Family Matters How to Help Children Cope with their Siblings’ Bleeding Disorder “I wish I had hemophilia.” A statement like that may sound startling, but it’s not unusual for brothers and sisters... Read More Family Matters, Family Matters Young Adults With Bleeding Disorders Pursue Healthcare Careers When Barlen Matias, an undergraduate intern at Shands Children’s Hospital at the University of Florida in Gainesville (UFG), encountered an... Read More Generation Next, Hemophilia A&B Your Bleeding-Blaster Buddy The first day of school: New clothes, new books and new kids to play with. You’ll also meet new teachers... Read More HemAware Junior Needle Know-How Shai,* now 8 years old, had been receiving almost-daily infusions of factor since he was diagnosed with an inhibitor at... Read More Family Matters Load More
