Safely Storing Factor at Home Starting a home-care regimen for hemophilia and other bleeding disorders can be a life-changing experience for families. Self-infusion, prophylactically or... Read More Hemophilia A&B, Von Willebrand Disease, Family Matters Making Adherence a Routine Read about the iPhone app Hemolog. Donna LeBrun has a full-time job as a field service representative for a home... Read More Family Matters How to Help Children Cope with their Siblings’ Bleeding Disorder “I wish I had hemophilia.” A statement like that may sound startling, but it’s not unusual for brothers and sisters... Read More Family Matters, Family Matters Young Adults With Bleeding Disorders Pursue Healthcare Careers When Barlen Matias, an undergraduate intern at Shands Children’s Hospital at the University of Florida in Gainesville (UFG), encountered an... Read More Generation Next, Hemophilia A&B Your Bleeding-Blaster Buddy The first day of school: New clothes, new books and new kids to play with. You’ll also meet new teachers... Read More HemAware Junior Needle Know-How Shai,* now 8 years old, had been receiving almost-daily infusions of factor since he was diagnosed with an inhibitor at... Read More Family Matters Paying for College When You Have a Bleeding Disorder Renée Embry, 23, has a platelet disorder and is a full-time student at the University of Memphis. She’s double-majoring in... Read More Generation Next Fear No Needle! A child’s fear of and protest against the hemophilia infusion process often create a stressful situation for himself and his... Read More Family Matters Taming the Wild Ouchies Ouch! It hurts when you fall off your bike, scrape your knee or get a bleed in your joint. When... Read More HemAware Junior Traveling with Medication Hopping a plane can be stressful nowadays, as you deal with long check-in lines, baggage fees and enhanced security. But... Read More Family Matters Hemophilia Leadership Group Created A select group of hemophilia community leaders visited the National Hemophilia Foundation (NHF) national offices in New York City in... Read More Adults & Aging, Hemophilia A&B, Advocacy, Community in Action Pumping Iron “Iron-poor blood” sounds like an old-fashioned ailment, but it’s not. It’s still the most common 21st-century cause of a condition... Read More Adults & Aging, Fitness & Nutrition, Women's Bleeding Disorders Load More
