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The Benefits Of Knowing Your Genotype
“Missense” and “nonsense” make sense at the molecular level. These are genetic mutations that cause hemophilia. Knowing your genotype, or...
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Hemophilia A&B
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Carriers
Making Adherence a Routine
Read about the iPhone app Hemolog. Donna LeBrun has a full-time job as a field service representative for a home...
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Family Matters
Hemophilia Pseudotumors 101
When Murali Pazhayannur slipped while getting into a rickshaw during a Calcutta monsoon, he had no inkling he’d still be...
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Hemophilia A&B
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Rare Bleeding Disorders
The Unfamiliar Bleed
See Letter to the Editor in response to this article.
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Family Matters
The X Factor
Two women’s experiences with factor X deficiency.
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Rare Bleeding Disorders
NHF-Shire Clinical Fellow Profile: Courtney Thornburg, MD, MS
HemAware is conducting a series of interviews with recipients of the NHF-Shire Clinical Fellowship. It is funded through the generous...
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Researcher Profiles
Honoring Henry
In each issue of HemAware, we “Take 5” with people in the bleeding disorders community and spotlight their accomplishments with...
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My Journey
Managing Disease While Aging With Hemophilia
Better treatments and comprehensive care provided at hemophilia treatment centers (HTCs) during the past 35 years mean people with hemophilia...
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Adults & Aging
5 Ways to Foster Independence in Your Teen with a Bleeding Disorder
If you have a child with a bleeding disorder, the teen years can be challenging. It’s a time when adolescents...
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Family Matters
Playing Sports With Hemophilia
To play or not to play? For kids with bleeding disorders, that is the question—at camp, at school, at home...
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Fitness & Nutrition
Researcher Profile: Christine Kempton, MD, MSc
HemAware is conducting a series of interviews with researchers who have received awards from the National Hemophilia Foundation (NHF) to...
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Researcher Profiles
Medicaid and Bleeding Disorders
Medicaid has long been regarded as the safety-net health insurance program for low-income individuals and families, seniors and those with...
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Fighting for You
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Insurance
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Need Information about Bleeding Disorders?
Contact The Neil Frick Resource Center (NFRC)
Contact NFRC