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BDAM

How Bleeding Disorders Awareness Month Has Impacted the Community

The National Hemophilia Foundation (NHF) celebrates its 75th anniversary in 2023. Throughout the year, HemAware.org will be commemorating this special...

NBDF in Action, Advocacy, 75th Anniversary

James V. Luck Jr., MD

Community Heroes: James V. Luck Jr., MD

Growing up in Southern California, James V. Luck Jr., MD, heard inspiring—and hair-raising—family stories about orthopedic surgery. In 1911, Luck’s...

Community in Action

Ask a Social Worker: What’s the difference between an MSW Degree and a LCSW?

Ask a Social Worker: What’s the difference between an MSW Degree and a LCSW?

Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social...

Ask a Social Worker

Young woman puzzled

I’m Turning 26, What Are My Healthcare Insurance Options?

When you turn 18, you can exercise your right to vote. At 21, you can legally purchase alcohol. And when...

Generation Next

Sami

Sami Rappoport’s Labor of Love

The actress and filmmaker hopes to make a film about her grandfather, who had hemophilia A and an inhibitor.

Community in Action

Dad and child with hemophilia

Is Your Child in Pain?

When Sherry Johnson’s* son, Mark*, was three years old, he had a joint bleed and was brought to his local...

Family Matters

Young man with hemophilia

Patient Assistance Programs

Katherine Spacek has never had to use the patient assistance program offered by the manufacturer of the clotting factor used...

Taking Charge, Insurance

Genotyping

The Benefits Of Knowing Your Genotype

“Missense” and “nonsense” make sense at the molecular level. These are genetic mutations that cause hemophilia. Knowing your genotype, or...

Hemophilia A&B, Carriers

Hospital Emergency Room sign

Hemophilia Pseudotumors 101

When Murali Pazhayannur slipped while getting into a rickshaw during a Calcutta monsoon, he had no inkling he’d still be...

Hemophilia A&B, Rare Bleeding Disorders

Toddler with a joint bleed

The Unfamiliar Bleed

See Letter to the Editor in response to this article.

Family Matters

The X Factor

The X Factor

Two women’s experiences with factor X deficiency.

Rare Bleeding Disorders

Young boy thinking

Making Adherence a Routine

Read about the iPhone app Hemolog. Donna LeBrun has a full-time job as a field service representative for a home...

Family Matters

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)