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I’m Turning 26, What Are My Healthcare Insurance Options?

When you turn 18, you can exercise your right to vote. At 21, you can legally purchase alcohol. And when...

Generation Next

When Sherry Johnson’s* son, Mark*, was three years old, he had a joint bleed and was brought to his local...

Family Matters

Katherine Spacek has never had to use the patient assistance program offered by the manufacturer of the clotting factor used...

Taking Charge, Insurance

“Missense” and “nonsense” make sense at the molecular level. These are genetic mutations that cause hemophilia. Knowing your genotype, or...

Hemophilia A&B, Carriers

When Murali Pazhayannur slipped while getting into a rickshaw during a Calcutta monsoon, he had no inkling he’d still be...

Hemophilia A&B, Rare Bleeding Disorders

See Letter to the Editor in response to this article.

Family Matters

Two women’s experiences with factor X deficiency.

Read about the iPhone app Hemolog. Donna LeBrun has a full-time job as a field service representative for a home...

Family Matters

HemAware is conducting a series of interviews with recipients of the NHF-Shire Clinical Fellowship. It is funded through the generous...

In each issue of HemAware, we “Take 5” with people in the bleeding disorders community and spotlight their accomplishments with...

My Journey

If you have a child with a bleeding disorder, the teen years can be challenging. It’s a time when adolescents...

Family Matters

To play or not to play? For kids with bleeding disorders, that is the question—at camp, at school, at home...