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Paddle Power

Renee Embry has a platelet dysfunction and Ehlers-Danlos syndrome, but that doesn’t stop her from getting out on the water.

Fitness & Nutrition

Eating Healthy

Did you know that there are 55 nutrients that your body needs every day? That’s a lot to keep track...

HemAware Junior

Woman with abdominal pain, grimacing and gripping stomach area

Ovarian Cysts

Few medical conditions mirror the pain of a burst appendix. But women with a ruptured ovarian cyst say it comes...

Women's Bleeding Disorders, Women's Bleeding Disorders

Summer Safety

It’s easy to feel cooped up in school all day. That’s why summer is so great! It’s warm, you have...

HemAware Junior

When Donations Save Lives

Living with a bleeding disorder in a developing country poses unique hardships for patients. “When I was 12 years old...

Global Focus

The Right Fit

Earlier this year, Wayne Cone joined a gym in his hometown of Jacksonville, Florida. Cone, who has severe hemophilia A...

Fitness & Nutrition

Sarah Watson, right, with her sister, Ashley Chan, and their kids.

Managing Mild Hemophilia: Be Prepared for the Unexpected

Careful monitoring and prompt treatment are essential.

Hemophilia A&B, Women's Bleeding Disorders

Coping with Family Stress

Stress. No one wants it, but everyone has it. And when you add a chronic illness like a bleeding disorder...

Family Matters

Physical Therapy and Aquatic Therapy

In the past, people with bleeding disorders have been told to proceed with caution with some types of physical therapy...

Fitness & Nutrition, Pain Management, Taking Charge

5 Books on the History of the Bleeding Disorders Community

The bleeding disorders community has changed dramatically over the past several decades. Advanced treatments mean people now live significantly improved...

Community in Action

Opening Doors to Better Care

Managing a bleeding disorder can be hard for anyone, but women face unique challenges, from getting a diagnosis to receiving...

Taking Charge

Black Men with Hemophilia Have a Shorter Life Expectancy than White Men

In the early 1900s, the average life expectancy for someone with hemophilia was just 13 years. Developing the therapies that...

Hemophilia A&B