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Physical Therapy and Aquatic Therapy

In the past, people with bleeding disorders have been told to proceed with caution with some types of physical therapy...

Fitness & Nutrition, Pain Management, Taking Charge

5 Books on the History of the Bleeding Disorders Community

The bleeding disorders community has changed dramatically over the past several decades. Advanced treatments mean people now live significantly improved...

Community in Action

Opening Doors to Better Care

Managing a bleeding disorder can be hard for anyone, but women face unique challenges, from getting a diagnosis to receiving...

Taking Charge

Black Men with Hemophilia Have a Shorter Life Expectancy than White Men

In the early 1900s, the average life expectancy for someone with hemophilia was just 13 years. Developing the therapies that...

Hemophilia A&B

Hemophilia Prophylaxis Leads to Joint Health

Like thousands of other people with hemophilia A, 17-year-old Sean O’Connor lacks the genetic machinery to produce a working version...

Hemophilia A&B

Hemophilia Look Back

For Mike O’Connor, attending college as a young man with hemophilia in the late 1970s and early 1980s meant forging...

Generation Next, Adults & Aging

Rare Finds

They’re the rarest of the rare: bleeding disorders like platelet storage pool disorder and factor XIII deficiency that affect only...

Community in Action

Factor XI Deficiency Facts

Blame it on the Girl Scout cookie. That’s what Josh Beck, 27, of Franklin, Wisconsin, was eating when he was...

Rare Bleeding Disorders

The Overlooked Cause of Abnormal Menstrual Bleeding

Many women accept excessive, prolonged periods as an annoying but ordinary part of being female—putting up with the monthly stress...

Von Willebrand Disease, Women's Bleeding Disorders

Off to the Races

HemAware “Takes 5” with people in the bleeding disorders community and spotlights their efforts with just five questions. Here, we...

My Journey

Vanya Green and a teenage boy with guitar for music therapy

Music Therapy Used for Pain Management

Plucking the strings of a harp proved to be therapeutic more than 2,800 years ago. The Bible records that when...

Pain Management

Memory Aid

Read about Haight's stepson's diagnosis and learn more about mild hemophilia.

My Journey, Community in Action