HemAware

Featured On HemAware

Why Has Gene Therapy for Hemophilia Been Slow to Catch On?

After years of excitement about a possible “one-and-done” treatment, gene therapy uptake has been slower than expected. Here’s why.
Read More
OhmBody: A New Approach to Therapy for Heavy Menstrual Bleeding

The wearable wellness device works without medications or hormones and complements other bleeding disorder treatments.
Read More
How to Choose the Right Hemophilia Treatment Options for You

In a rapidly changing hemophilia treatment landscape, shared decision-making helps patients and providers choose the option that fits best.
Read More

How to Choose the Right Hemophilia Treatment Options for You

It took years for Julie Schiffmacher to be diagnosed with von Willebrand disease. Now she’s turning that experience into advocacy.

My Journey

These two bleeding disorders share some similarities but are also unique in significant ways. Here’s what you need to know.

Hemophilia A&B, Von Willebrand Disease

Understanding more about your period can help you have greater control over your health, especially when managing a bleeding disorder.

On March 7–9, 2018, hundreds of people from around the country converged on Washington, DC, for the National Hemophilia Foundation’s...

Advocacy, Generation Next

On March 9, more than 500 people with bleeding disorders and their families put on their red ties and prepared...

NBDF in Action, Insurance, Advocacy

On March 18, nine athletes laced up their sneakers to run 13.1 miles in Manhattan and help people with bleeding...

NBDF in Action

Clinical trials provide important information about how well drugs and devices work and how safe they are, but they’re not...

Advocacy, Community in Action

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)