Community-Voices | HemAware

People with blood or bleeding disorders and their family members are at the heart of the National Hemophilia Foundation. Read in-depth profiles and stories about people in the bleeding disorders community.

Get Inspired in Chicago at NHF’s 63rd Annual Meeting

Chicago, the “city of big shoulders,” will embrace the bleeding disorders community for the National Hemophilia Foundation’s (NHF’s) 63rd Annual...

Community in Action

Road Rally

The Rally Concludes July 21, 2011

Community in Action

Inhibitor Family Camp

“You catch a fish, you kiss the fish, and then you throw it back,” explains Janet Brewer, MS, CEO of...

Community in Action

Father with two sons with hemophilia and inhibitors

2011 Inhibitor Summits

Living with hemophilia and an inhibitor can be isolating; people with inhibitors constitute a small portion of an already small...

Community in Action

Perseus Patel, winner of the NHF Kevin Child scholarship

2010 Kevin Child Scholarship Winner

Kevin Child was one month short of college graduation when he died of complications from AIDS in 1989. In his...

Community in Action

NHF Grants Allow New Families to Attend Annual Meeting

The National Hemophilia Foundation’s (NHF’s) Annual Meeting is the organization’s flagship event. It provides educational sessions for people with bleeding...

Community in Action

NHF on New York Morning Show

National Hemophilia Foundation CEO Val D. Bias and New York City nightlife photographer Patrick McMullan called attention to women’s bleeding...

Von Willebrand Disease, Community in Action, Women's Bleeding Disorders

Size of NHF Annual Meeting Surprises First-Timer

I anticipated my first National Hemophilia Foundation (NHF) Annual Meeting with a lot of excitement, but without many expectations. My...

Community in Action

First-Timers’ Perceptions of the NHF Annual Meeting

The National Hemophilia Foundation’s (NHF’s) Annual Meeting in November 2010 was our first NHF meeting. We were all excited to...

Von Willebrand Disease, Community in Action

NYLI Members Examine BP Oil Bleed in New Orleans

At the National Hemophilia Foundation’s (NHF’s) 62nd Annual Meeting in New Orleans in November 2010, the National Youth Leadership Institute...

Community in Action

Steps for Living: A New NHF Resource

The National Hemophilia Foundation (NHF) is developing “ Steps for Living,” a comprehensive, interactive Web site. It will provide in-depth...

Community in Action

Betty Jane and Bob Henry, co-founders of the National Hemophilia Foundation

NHF Co-Founder Betty Jane Henry Dies at 93

Betty Jane Henry died at her home in Wellington, Florida, on Sunday, September 5, at the age of 93. She...

Advocacy, Community in Action