In-depth profiles and stories about people in the bleeding disorders community. Hacking Hemophilia GroupMe. Facebook’s “like” button. Carousell. These are just a few of the innovations that have emerged out of hackathons—collaborative, intensive... Read More NBDF in Action NHF Inhibitor Education Summits Empower and Connect Living with hemophilia with inhibitors is difficult. The inhibitor—a development of antibodies to infused factor product—makes it more difficult to... Read More NBDF in Action Inside Washington Days 2018 On March 9, more than 500 people with bleeding disorders and their families put on their red ties and prepared... Read More NBDF in Action, Insurance, Advocacy Fueled by Inspiration: The Stories Behind NHF’s Half-Marathon Team On March 18, nine athletes laced up their sneakers to run 13.1 miles in Manhattan and help people with bleeding... Read More NBDF in Action After Approval: Ensuring the Safety of Bleeding Disorders Medicines Clinical trials provide important information about how well drugs and devices work and how safe they are, but they’re not... Read More Advocacy, Community in Action Gathering in Glasgow for the World Federation of Hemophilia World Congress “The threat to the life of just one hemophiliac would be sufficient reason for us to travel to this meeting... Read More Global Focus Everyday Heroes Help the Bleeding Disorders Community Amelia Mickeliunas Lemonade stand fundraiser, Omaha, Nebraska In 2016, when Jenny and Joe Mickeliunas’ newborn son, Elliott, was diagnosed with... Read More Community in Action My Twin with a Bleeding Disorder My brother, Sam, and I were born on the same day 23 years ago. I was completely healthy, but he... Read More My Journey Updated NHF Guidelines Aim to Improve Emergency Care In September 2017, the National Hemophilia Foundation’s Medical and Scientific Advisory Council (MASAC) adopted updated guidelines for the treatment of... Read More NBDF in Action 3 Ways to #ShowYourRare on Rare Disease Day 2018 On Wednesday, February 28, people all over the world will celebrate Rare Disease Day. EURORDIS, a nongovernmental alliance of organizations... Read More Community in Action Chris Bombardier: Reaching New Heights How mountaineer Chris Bombardier persevered to become the first person with hemophilia to summit Mount Everest. Read More Taking Charge, My Journey A New Era for Hemophilia Care Research The WFH World Bleeding Disorders Registry will advance understanding of hemophilia around the globe. Read More Global Focus Load More
