Advocacy

Back to School: What Are IEPs and 504 Plans, and How Can They Help a Child with a Bleeding Disorder?

If you have school-age children (or you’re about to), you may have heard of 504 plans and IEPs. But you...

Family Matters, Advocacy

Group of youths at an NYLI teen retreat in Texas.

NYLI Alumni: The Next Generation of Bleeding Disorders Leaders

Since it formally began in 2002, the National Youth Leadership Institute (NYLI) at the National Hemophilia Foundation (NHF) has seen...

Generation Next, Advocacy

Idaho bleeding disorders advocate Zach Walker

Close to Home: The Critical Importance of State Advocacy

Meet a few of the dedicated state-based advocates building strong partnerships to protect and improve the lives of people with...

Advocacy

Young Bleeding Disorders Advocates Make a Difference

On March 7–9, 2018, hundreds of people from around the country converged on Washington, DC, for the National Hemophilia Foundation’s...

Advocacy, Generation Next

Boy talks with Congressional staffer during NHF's Washington Days 2018

Inside Washington Days 2018

On March 9, more than 500 people with bleeding disorders and their families put on their red ties and prepared...

NBDF in Action, Insurance, Advocacy

Medicine vials used for medical research with syringe for

After Approval: Ensuring the Safety of Bleeding Disorders Medicines

Clinical trials provide important information about how well drugs and devices work and how safe they are, but they’re not...

Advocacy, Community in Action

NHF’s Washington Days Advocacy Event Mobilizes on Healthcare

Against a backdrop of a possible repeal of the Affordable Care Act (ACA), the National Hemophilia Foundation’s (NHF) Washington Days...

Advocacy

Access to hemophilia care and treatment in developing countries is an urgent public health challenge

Highlights of the WFH Humanitarian Aid Program

The minimum amount of clotting factor a country requires to avert death in life-threatening instances is 1 international unit (IU)...

Advocacy

March Is Now Bleeding Disorders Awareness Month

Obtaining the federal designation of March as Bleeding Disorders Awareness Month was the cornerstone of the National Hemophilia Foundation’s (NHF’s)...

Advocacy

2016 Spring Soiree

On May 19, 2016, more than 200 people gathered at Current at Chelsea Piers to celebrate the honorees of the...

Advocacy

Seeing Red

Efforts to raise awareness of health conditions have gotten more creative. The Ice Bucket Challenge brought prominence to the condition...

Advocacy

Advocacy Depends on You

The National Hemophilia Foundation (NHF) has been advocating for the bleeding disorders community and holding advocacy days in Washington, DC...

Advocacy