Researcher Support Critical to New Drug Development The bleeding disorders community is in a unique period of drug development. Almost every pharmaceutical company currently producing factor products... Read More Researcher Profiles, Advocacy Finger on the Pulse The National Hemophilia Foundation (NHF) is collaborating with LA Kelley Communications to educate the bleeding disorders community on a variety... Read More Community in Action, Insurance Advocating for HTC Funding Read about the history of HTC funding and the growing needs. With the federal deficit now in the trillions, one... Read More Advocacy HTC History of Growing Needs and Financial Challenges Read about advocacy efforts for the hemophilia treatment center network. Read More Advocacy Approval Process for Biosimilars Examined by FDA By now, most people with hemophilia and other bleeding disorders and their families know the Patient Protection and Affordable Care... Read More Hemophilia A&B, Advocacy XMRV Update Update: On May 31, 2011, the journal Science published two papers online that it says cast doubt on the link... Read More Blood Safety Could Healthcare Reform Be Repealed? Repealing the 2010 healthcare reform law is on the agenda of many of the Republican and Tea Party representatives who... Read More Advocacy, Insurance Washington Days 2011 Although few people relish public speaking, hitting a lifetime benefits cap or being denied access to insurance because of a... Read More Advocacy Figuring Out Healthcare Costs for Your Child For parents of a child newly diagnosed with a bleeding disorder, medical costs and insurance coverage instantly become big concerns... Read More Insurance Hemophilia Headlines Hemophilia and von Willebrand disease (VWD) are not well-known outside the bleeding disorders community. But thanks to the spotlight on... Read More Advocacy NHF Washington Days Advocates Head to Capitol Hill “Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing... Read More Advocacy Hemophilia Takes Center Stage Despite hemophilia’s very visible symptoms—bleeding and bruising— the disorder has been a hidden one for a long time. Read More Hemophilia A&B, Advocacy Load More
