HTC History of Growing Needs and Financial Challenges Read about advocacy efforts for the hemophilia treatment center network. Read More Advocacy Approval Process for Biosimilars Examined by FDA By now, most people with hemophilia and other bleeding disorders and their families know the Patient Protection and Affordable Care... Read More Hemophilia A&B, Advocacy XMRV Update Update: On May 31, 2011, the journal Science published two papers online that it says cast doubt on the link... Read More Blood Safety Could Healthcare Reform Be Repealed? Repealing the 2010 healthcare reform law is on the agenda of many of the Republican and Tea Party representatives who... Read More Advocacy, Insurance Washington Days 2011 Although few people relish public speaking, hitting a lifetime benefits cap or being denied access to insurance because of a... Read More Advocacy Figuring Out Healthcare Costs for Your Child For parents of a child newly diagnosed with a bleeding disorder, medical costs and insurance coverage instantly become big concerns... Read More Insurance Hemophilia Headlines Hemophilia and von Willebrand disease (VWD) are not well-known outside the bleeding disorders community. But thanks to the spotlight on... Read More Advocacy NHF Washington Days Advocates Head to Capitol Hill “Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing... Read More Advocacy Hemophilia Takes Center Stage Despite hemophilia’s very visible symptoms—bleeding and bruising— the disorder has been a hidden one for a long time. Read More Hemophilia A&B, Advocacy NHF Co-Founder Betty Jane Henry Dies at 93 Betty Jane Henry died at her home in Wellington, Florida, on Sunday, September 5, at the age of 93. She... Read More Advocacy, Community in Action Hemophilia Treatment Centers 101 Lisa and Michael Louwers are both doctors, but the Farmington Hills, Michigan, couple didn’t know much about hemophilia or other... Read More Hemophilia A&B, Rare Bleeding Disorders, Von Willebrand Disease, Taking Charge, Advocacy Plasma-Derived Factor Is Safer Than Ever When the first plasma-derived clotting factor concentrates were introduced in the late 1960s and 1970s, they revolutionized the treatment of... Read More Hemophilia A&B, Blood Safety Load More
