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The Power of Connection for People with Rare Bleeding Disorders
People with rare bleeding disorders face challenges, but increasingly they are facing them together.
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Rare Bleeding Disorders
Putting the Spotlight on Mental Health and Bleeding Disorders
Help is available both in the bleeding disorders community and beyond.
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Taking Charge
Walk This Way
TV can sometimes be your tutor, especially if you follow reruns of FOX TV’s popular medical drama, “House.” Dr. Gregory...
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Taking Charge
Give and Thank
Every year, National Hemophilia Foundation (NHF) chapters can choose to recognize one dedicated volunteer with a Chapter Recognition Award, which...
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Chapter Roundup
Immune Tolerance Induction Can Eliminate Inhibitors
A mother’s intuition can lead to the diagnosis of an inhibitor, an antibody to infused factor product concentrate. For Amanda...
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Family Matters
Gene Therapy: The New Reality
After decades of research, gene therapy for hemophilia is here—but questions remain.
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Novel Technologies
Reaching Out to Local Chapters
Running a local chapter for the bleeding disorders community is no easy task. Most of the National Hemophilia Foundation’s (NHF’s)...
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Chapter Roundup
Dogs' Priceless Contribution to Hemophilia Research
Russell Crowe is expertly groomed and soaks up attention from adoring caretakers. He also gets chew toys. Russell is a...
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Hemophilia A&B
Camps for Kids with Bleeding Disorders
See the NHF Camp Directory. Daniel Birgy didn’t want to go to camp. The doctors and nurses at his hemophilia...
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Family Matters
Recognizing Racial and Ethnic Health Disparities in Black and Latinx Communities
Racial and ethnic disparities in healthcare are nothing new. Black and Latinx people have long struggled with getting others to...
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Community in Action
Aging with Hemophilia
When Ed Wilson was three years old and already diagnosed with hemophilia, doctors told his parents he wouldn’t live past...
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Adults & Aging
Home Sweet Dental Home
Read Finding a Dentist Who Treats People With Bleeding Disorders. Making dental care part of your family’s daily routine takes...
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Family Matters
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Need Information about Bleeding Disorders?
Contact The Neil Frick Resource Center (NFRC)
Contact NFRC