In-depth profiles and stories about people in the bleeding disorders community. One Man's New Lease on Life Michael Tuberdyck: I found out I had hepatitis C sometime in the 1990s, which I contracted years before from tainted... Read More My Journey My Bleeding Disorders Community (MyBDC): For You, By You For years, researchers studying the bleeding disorders community have sought answers to questions about people’s experiences that only community voices... Read More Community in Action NHF’s 71st Bleeding Disorders Conference At the Opening Session of the National Hemophilia Foundation’s (NHF) 71st Bleeding Disorders Conference, held October 3-5 in Anaheim, California... Read More NBDF in Action von Willebrand Disease: A Global Concern von Willebrand disease (VWD) is a bleeding disorder linked to a blood-clotting protein called von Willebrand factor that helps control... Read More Global Focus Red Tie Runners Make Their Mark with $40,000 Raised for NHF On November 3, 2019, nine athletes laced up their sneakers, tied on their race numbers and prepared to make history... Read More NBDF in Action Morgan Hampton: ‘I Was Lucky to Grow Up When I Did’ I’ve always known I had hemophilia, even before I knew what it was. Since it’s all I’ve ever known, there... Read More My Journey Philanthropists of the Year: Steve and Sheila Kopenitz Texas couple commits to helping families make lifelong connections. Read More Community in Action Community Heroes: NHF CEO Val D. Bias When Val D. Bias became chief executive officer of the National Hemophilia Foundation (NHF) in 2008, he wasn’t just the... Read More Community in Action, Advocacy Community Heroes: Marion Koerper, MD On the first day of her pediatric internship at San Francisco General Hospital, Marion Koerper, MD, noticed a 4-year-old boy... Read More Community in Action Community Heroes: James V. Luck Jr., MD Growing up in Southern California, James V. Luck Jr., MD, heard inspiring—and hair-raising—family stories about orthopedic surgery. In 1911, Luck’s... Read More Community in Action Community Heroes: Ramiro Gomez Few young artists will ever make the sort of leap that Ramiro Gomez has in less than a decade. In... Read More Community in Action Community Heroes: Renita Johnson As a board member of Hemophilia of South Carolina, Renita Johnson knows that better care for people with bleeding disorders... Read More Community in Action, Advocacy Load More
