Community Pulse

Community Pulse

In-depth profiles and stories about people in the bleeding disorders community.

 

AscellaHealth unveils groundbreaking hemophilia management program designed with patient care at its core.
Clinical trials are underway to help us evaluate the goals and understand the possible risks of gene transfer therapy…
While in-person fundraising events and other opportunities to gather face to face to aid the bleeding disorders community are largely...
A genetic condition could potentially have a genetic solution, right? This logical thinking gave birth to the first research in...
Nothing is as sweet and satisfying as having ice cream on a hot summer day…except, perhaps, raising $7,500 through your...
It’s Bleeding Disorders Awareness Month, and the National Hemophilia Foundation (NHF) is once again encouraging those within the community, and...
Michael Tuberdyck: I found out I had hepatitis C sometime in the 1990s, which I contracted years before from tainted...
For years, researchers studying the bleeding disorders community have sought answers to questions about people’s experiences that only community voices...
At the Opening Session of the National Hemophilia Foundation’s (NHF) 71st Bleeding Disorders Conference, held October 3-5 in Anaheim, California...
von Willebrand disease (VWD) is a bleeding disorder linked to a blood-clotting protein called von Willebrand factor that helps control...
On November 3, 2019, nine athletes laced up their sneakers, tied on their race numbers and prepared to make history...
I’ve always known I had hemophilia, even before I knew what it was. Since it’s all I’ve ever known, there...
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