Advocacy

Above and Beyond

“THINK BETTER. THINK BIGGER. THINK BEYOND.” These are the themes Steven W. Pipe, MD, laid out in summer 2015 as...

Advocacy

I have been the executive director of the Virginia Hemophilia Foundation (VHF) for nearly 10 years. It has been tremendously...

Advocacy

When a person with hemophilia seeks medical care outside his or her hemophilia treatment center (HTC), most likely the physician...

Advocacy

Nearly two decades ago I joined a team of researchers, mostly comprising physician-scientists, to help develop a gene therapy for...

Advocacy

Nearly 350 members of the bleeding disorders community gathered in Washington, DC, February 24–27, 2015, for NHF’s annual advocacy event...

Advocacy

The bleeding disorders community is a diverse one: There are parents startled by the diagnosis of an unexpected disorder in...

Advocacy

What do a TV star, a juggler and a mock candidate for president of the United States have in common...

Advocacy

Social media has long been lauded for its ability to connect people with common interests, regardless of their location. When...

Advocacy

It was December 1984, and Ryan White was a middle school student in Kokomo, Indiana. He’d just learned during hemophilia...

Generation Next, Advocacy

In January, the National Hemophilia Foundation (NHF) announced the dedication of the NHF/Novo Nordisk HANDI Library with a ribbon-cutting ceremony...

Advocacy

On April 28, on the banks of the Hudson River, the National Hemophilia Foundation (NHF) welcomed 250 people to its...

Advocacy

When Michelle Rice’s older son, Lance, was 5 days old, he had an intracranial hemorrhage and spent three weeks in...

Advocacy