Advocacy

HemAware has everything you need to know about inheritable blood and bleeding disorders. Together, we fight for access to healthcare. Read now to learn more.

Information for All Providers

When a person with hemophilia seeks medical care outside his or her hemophilia treatment center (HTC), most likely the physician...

Advocacy

Research and Education Work Together

Nearly two decades ago I joined a team of researchers, mostly comprising physician-scientists, to help develop a gene therapy for...

Advocacy

Advocating for Change

Nearly 350 members of the bleeding disorders community gathered in Washington, DC, February 24–27, 2015, for NHF’s annual advocacy event...

Advocacy

Annual Meeting Highlights

The bleeding disorders community is a diverse one: There are parents startled by the diagnosis of an unexpected disorder in...

Advocacy

Comedic Fundraising

What do a TV star, a juggler and a mock candidate for president of the United States have in common...

Advocacy

#HemoChat History

Social media has long been lauded for its ability to connect people with common interests, regardless of their location. When...

Advocacy

Ryan White’s Passion

It was December 1984, and Ryan White was a middle school student in Kokomo, Indiana. He’d just learned during hemophilia...

Generation Next, Advocacy

NHF’s HANDI Library Goes Digital

In January, the National Hemophilia Foundation (NHF) announced the dedication of the NHF/Novo Nordisk HANDI Library with a ribbon-cutting ceremony...

Advocacy

Springtime on the Hudson

On April 28, on the banks of the Hudson River, the National Hemophilia Foundation (NHF) welcomed 250 people to its...

Advocacy

Teachable Moments

When Michelle Rice’s older son, Lance, was 5 days old, he had an intracranial hemorrhage and spent three weeks in...

Advocacy

The Right Tools

To be a successful advocate, you need key tools at your disposal, such as a way to voice your opinion...

Advocacy

Hispanic Connection

Nearly every industry that serves the public must change the way it communicates to reach the growing Hispanic population, including...

NHF in Action