Fighting For You

Fighting for You

Nearly two decades ago I joined a team of researchers, mostly comprising physician-scientists, to help develop a gene therapy for...
Nearly 350 members of the bleeding disorders community gathered in Washington, DC, February 24–27, 2015, for NHF’s annual advocacy event...
The bleeding disorders community is a diverse one: There are parents ­startled by the diagnosis of an unexpected disorder in...
What do a TV star, a juggler and a mock candidate for president of the United States have in common...
Social media has long been lauded for its ability to connect people with common interests, regardless of their location. When...
It was December 1984, and Ryan White was a middle school student in Kokomo, Indiana. He’d just learned during hemophilia...
In January, the National Hemophilia Foundation (NHF) announced the dedication of the NHF/Novo Nor­disk HANDI Library with a ribbon-cutting ceremony...
On April 28, on the banks of the Hudson River, the National Hemophilia Foundation (NHF) welcomed 250 people to its...
When Michelle Rice’s older son, Lance, was 5 days old, he had an intra­cranial hemorrhage and spent three weeks in...
Having the right health insurance can mean the difference between smooth sailing and being shipwrecked when it comes to coverage...
To be a successful advocate, you need key tools at your disposal, such as a way to voice your opinion...
Bills that come up for a vote in Washington, DC, often stall as they get defeated repeatedly on the US...
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