ER Form for Bleeding Disorders An Emergency Information Form for Children with Special Health Needs is available to help parents explain their child’s complicated medical... Read More Hemophilia A&B, Rare Bleeding Disorders, Von Willebrand Disease, Taking Charge Fresh Air Sean Sweeney welcomes any excuse to get outdoors. Perhaps his favorite fresh-air pastime and fitness activity is Frisbee ® golf... Read More Fitness & Nutrition Vitamin D and Hemophilia Vitamin D, the “sunshine vitamin,” has garnered interest across many medical fields. For patients with hemophilia, boning up on bone... Read More Fitness & Nutrition Creative Treatment When Ramiro Gomez was a freshman in high school, he was already starting on the varsity soccer squad in his... Read More Pain Management Tai Chi Moves Body and Soul Amr Elbeshir was bored with going to the gym and lifting weights. He wanted something that would exercise his mind... Read More Fitness & Nutrition Study: High-Impact Activity Doesn't Increase Joint Bleeds “PF Flyers make you run faster and jump higher,” boasted an old advertisement for Keds ® sneakers. Turns out those... Read More Hemophilia A&B, Fitness & Nutrition Hemophilia Treatment Centers 101 Lisa and Michael Louwers are both doctors, but the Farmington Hills, Michigan, couple didn’t know much about hemophilia or other... Read More Hemophilia A&B, Rare Bleeding Disorders, Von Willebrand Disease, Taking Charge, Advocacy Playing Sports With Hemophilia To play or not to play? For kids with bleeding disorders, that is the question—at camp, at school, at home... Read More Fitness & Nutrition Discussing Your Bleeding Disorder with Your Boyfriend Dating is always fraught with anxiety. For women with bleeding disorders, the nervousness is compounded by the inevitability of “The... Read More Von Willebrand Disease, Taking Charge How to Talk to Your Doctor Twenty-three seconds. That’s the time it took for Jesse Owens to break the world record in the 220-yard low hurdles... Read More Taking Charge Culture Clash Huma Siddiqui of Madison, Wisconsin, has been in the US for a dozen years, but one of the things that... Read More Taking Charge Manage Hemophilia with a Personal Health Record When Michael Schultz was 10 years old, his parents put him in charge of self-infusions to manage his moderate hemophilia... Read More Hemophilia A&B, Taking Charge Load More