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6 grupos que toda red de apoyo para trastornos hemorrágicos necesit
Un trabajador social comparte seis grupos a considerar para su red de apoyo cuando enfrenta un trastorno hemorrágico.
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Taking Charge
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Adults & Aging
How to Prepare for the End of Life: A Guide for People With Bleeding Disorders
The end of life is something few people want to discuss. But planning can ensure that your wishes are met.
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Adults & Aging
Cómo prepararse para el final de la vida: una guía para las personas con trastornos hemorrágicos
El final de la vida es algo de lo que poca gente quiere hablar. Sin embargo, la planificación puede garantizar...
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Adults & Aging
Ask a Social Worker: How Can I Stay Active with a Bleeding Disorder Without So Many Limitations?
“Ask a Social Worker” is a regular column featuring questions from the community and answers from members of NBDF’s Social...
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Ask a Social Worker
Pregunte a un trabajador social: ¿Cómo puedo mantener un buen nivel de actividad con un trastorno hemorrágico sin tantas limitaciones?
“Pregunte a un trabajador social” es una columna regular en la que aparecen preguntas de la comunidad y respuestas de...
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Ask a Social Worker
Cómo criar hijos con trastornos hemorrágicos: una historia de defensa
Como madre de dos hijos con hemofilia, Delores Johnson-Huber aprendió a ser una defensora fuerte.
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My Journey
Raising Sons with Bleeding Disorders: An Advocacy Journey
As the mother of two sons with hemophilia, Delores Johnson-Huber has learned to be a strong advocate.
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My Journey
Una pareja de Houston ayuda a financiar la investigación de nuevas curas para los trastornos hemorrágicos
Kim y Scott Martin, partidarios de la NBDF desde hace mucho tiempo, son donantes fundadores del fondo de filantropía de...
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Advocacy
Houston Couple Helps Fund Research for New Bleeding Disorder Cures
Longtime NBDF supporters Kim and Scott Martin are founding donors to the foundation’s venture philanthropy fund.
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Advocacy
Is Gene Therapy Clinical Trial Participation Right for Me?
Learn what to expect in a gene therapy clinical trial for hemophilia and what to consider before participating.
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Sponsored Content
Together, Let’s Move the Science of Hemophilia Forward®
Get an overview of investigational gene therapy, an approach being researched for use in hemophilia
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Sponsored Content
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Need Information about Bleeding Disorders?
Contact The Neil Frick Resource Center (NFRC)
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