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Teenage boy with hemophilia and depression

A Dark Cloud

When Robin* was 8 years old, his life started becoming overwhelming. “Everything started coming in on him at once,” says...
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Family Matters
Teenage boy with hemophilia and depression

Una nube negra

Cuando Robin* tenía 8 años, su vida empezó a volverse abrumadora. “Comenzó a pasarle de todo a la vez”, dijo...
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Connecting Online

Connecting Online

“Only connect.”
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Generation Next
Young woman puzzled

I’m Turning 26, What Are My Healthcare Insurance Options?

When you turn 18, you can exercise your right to vote. At 21, you can legally purchase alcohol. And when...
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Generation Next
Young woman puzzled

Voy a cumplir 26 años, ¿cuáles son mis opciones de seguro de atención médica?

Cuando cumpla 18 años, puede ejercer su derecho al voto. A los 21 años, puede legalmente comprar alcohol. Y cuando...
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Generation Next
How to Help Your Child with a Bleeding Disorder Cope with Anxiety and Stress in the Pandemic

How to Help Your Child with a Bleeding Disorder Cope with Anxiety and Stress in the Pandemic

The COVID-19 pandemic has many families on edge right now. Jobs are being cut, routines are disrupted, and with social...
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Family Matters
How to Help Your Child with a Bleeding Disorder Cope with Anxiety and Stress in the Pandemic

Cómo ayudar a su hijo(a) con un trastorno hemorrágico a sobrellevar la ansiedad y el estrés durante la pandemia

La pandemia de COVID-19 tiene a muchas familias nerviosas en este momento. Se recortan los empleos, se interrumpen las rutinas...
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Family Matters
Young boy thinking

Making Adherence a Routine

Read about the iPhone app Hemolog. Donna LeBrun has a full-time job as a field service representative for a home...
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Family Matters
A collage of photos of Bridget Edwards at different stages in life.

One in a Million: Living with Afibrinogenemia

Bridget Edwards was diagnosed with a rare bleeding disorder as a newborn, after a routine heel stick wouldn’t stop bleeding...
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Generation Next
A collage of photos of Bridget Edwards at different stages in life.

Uno en un millón: la vida con afibrinogenemia

A Bridget Edwards le diagnosticaron un raro trastorno hemorrágico como recién nacida, después de que un pinchazo de rutina para...
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Generation Next
man staring off into the distance

Independence Days

Little about the growing-up experience is easy for children or parents. If you’re a young adult with a bleeding disorder...
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Generation Next
Boy grinning with missing tooth

Finding a Dentist Who Treats People With Bleeding Disorders

Read Home Sweet Dental Home about the dental care your family needs. During her almost 30 years working with hemophilia...
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Family Matters
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Need Information about Bleeding Disorders?
Contact The Neil Frick Resource Center (NFRC)
Contact NFRC