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Burnout Breakthrough

When you’re the primary caregiver for someone with a bleeding disorder, sometimes it seems like just one more thing will...

Family Matters

Kathy Gerus-Darbison remembers the silence. It was the silence she received in response to her questions after she was diagnosed...

HIV

Researchers presented a range of findings on the subject.

Hemophilia A&B

Despite the commercials on TV, osteoporosis—a disease characterized by weak, brittle bones—doesn’t just occur in older women. When Joe Nozemack...

Adults & Aging

When Dawn Rotellini started the Rocky Mountain Hemophilia and Bleeding Disorders Association in Bozeman, Montana, 15 years ago to serve...

Chapter Roundup, Advocacy

Unexplained weight loss. Short on stamina. Winded while running. Those symptoms landed David Britton, who has mild hemophilia A, in...

Adults & Aging, Taking Charge, Taking Charge

Ray Stanhope may be the one in his family with hemophilia, but he’s not the only one who deals with...

Taking Charge, Advocacy

During the past 18 months, the National Hemophilia Foundation (NHF) has put finishing touches on its plan to connect chapters...

Chapter Roundup

Susan Scroggins didn’t know which was worse: that both her children had been diagnosed with type 1 von Willebrand disease...

Growing older with hemophilia can feel less like the golden age and more like the rust years. Stiff joints, heart...

Adults & Aging, Hemophilia A&B

NHF is committed to the training and support of clinician-researchers in hematology.

People with rare bleeding disorders face challenges, but increasingly they are facing them together.