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Treatment Breakthroughs
The marketing terms “new and improved” and “longer lasting” are not limited to the latest brand of chewing gum. They...
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Novel Technologies
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Hemophilia A&B
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Rare Bleeding Disorders
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Von Willebrand Disease
Be Prepared: Boy Scouting and Hemophilia
When he was 10, Dustin Huerta’s severe hemophilia A caused three to four bleeds a week and often sidelined him...
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Family Matters
Pondering Prophylaxis
For Christine Orr, the trigger for starting prophylaxis wasn’t just one thing. It was everything. Orr’s son, John, diagnosed with...
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Family Matters
Factor V Deficiency
Read more about the D'Ambrosios in stepmom Cheryl's own words, in our Community Voices section. A hangnail hardly constitutes a...
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Rare Bleeding Disorders
Celebrating HTC Social Workers
Social workers are essential members of the multidisciplinary care teams at hemophilia treatment centers (HTCs). As counselors and advocates for...
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Ask a Social Worker
Coverage Denied: The Growing Problem of Formulary Restrictions
For many years, Rodney Dalrymple, of Booneville, Mississippi, has managed his severe hemophilia A with a factor product that he...
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Advocacy
Burnout Breakthrough
When you’re the primary caregiver for someone with a bleeding disorder, sometimes it seems like just one more thing will...
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Family Matters
HIV Survivors Offer a Living Legacy
Kathy Gerus-Darbison remembers the silence. It was the silence she received in response to her questions after she was diagnosed...
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HIV
Hemophilia Gene Therapy Breakthroughs
Researchers presented a range of findings on the subject.
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Hemophilia A&B
Osteoporosis in Men with Hemophilia
Despite the commercials on TV, osteoporosis—a disease characterized by weak, brittle bones—doesn’t just occur in older women. When Joe Nozemack...
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Adults & Aging
Fostering Growth
When Dawn Rotellini started the Rocky Mountain Hemophilia and Bleeding Disorders Association in Bozeman, Montana, 15 years ago to serve...
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Chapter Roundup
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Advocacy
Kidney Care
Unexplained weight loss. Short on stamina. Winded while running. Those symptoms landed David Britton, who has mild hemophilia A, in...
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Adults & Aging
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Taking Charge
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Taking Charge
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Need Information about Bleeding Disorders?
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