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Cerca de casa: El papel fundamental de la promoción estatal
Conozca a algunos de los dedicados defensores del estado que construyen alianzas sólidas para proteger y mejorar la vida de...
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Advocacy
Bleeding Disorders Care in Guam Shows That No HTC Is an Island
One of the probably lesser known—and certainly most far-flung—of the 140-plus federally designated US hemophilia treatment centers (HTCs) will soon...
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Community in Action
La atención de los trastornos hemorrágicos en Guam muestra que ningún HTC es una isla
Uno de los Centros de Tratamiento de Hemofilia (HTC, por sus siglas en inglés) probablemente menos conocidos, y sin duda...
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Community in Action
NYLI Alumni: The Next Generation of Bleeding Disorders Leaders
Since it formally began in 2002, the National Youth Leadership Institute (NYLI) at the National Hemophilia Foundation (NHF) has seen...
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Generation Next
,
Advocacy
Exalumnos del Instituto Nacional de Liderazgo Juvenil (National Youth Leadership Institute, NYLI): La próxima generación de líderes en enfermedades hemorrágicas
Desde que comenzó formalmente en 2002, el Instituto Nacional de Liderazgo Juvenil de la Fundación Nacional contra la Hemofilia (National...
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Generation Next
,
Advocacy
‘I’m a Nurse Because of My Bleeding Disorder’
I was diagnosed with von Willebrand disease (VWD) three days after I was born, 25 years ago. A vitamin K...
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My Journey
,
Von Willebrand Disease
,
Women's Bleeding Disorders
“Soy enfermera debido a mi enfermedad hemorrágica”
Me diagnosticaron la enfermedad de von Willebrand (von Willebrand Disease, VWD) tres días después de que nací, hace 25 años...
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My Journey
,
Von Willebrand Disease
,
Women's Bleeding Disorders
Going Phone-Free at Bleeding Disorders Camp
Ding-dong! Ding-dong! The sound of a ringing bell means another camper has reached the top of the climbing tower at...
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Family Matters
Nada de teléfonos en el campamento de trastornos hemorrágicos
¡Din don! ¡Din don! El sonido de una campana significa que otro campista ha llegado a la cima de la...
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Family Matters
Is Your Smartphone Disrupting Your Sleep?
Does this scenario sound familiar? It’s late and you should be going to bed, but you have a few more...
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Taking Charge
¿Su teléfono inteligente interrumpe su sueño?
¿Este escenario le suena familiar? Es tarde y debería irse a la cama, pero tiene que leer unos cuantos correos...
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Taking Charge
5 Tips for Infusing Away From Home
If you or your child has a bleeding disorder, infusing away from home can be challenging for several reasons. You’re...
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Taking Charge
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Need Information about Bleeding Disorders?
Contact The Neil Frick Resource Center (NFRC)
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