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Access to hemophilia care and treatment in developing countries is an urgent public health challenge

Highlights of the WFH Humanitarian Aid Program

The minimum amount of clotting factor a country requires to avert death in life-threatening instances is 1 international unit (IU)...
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Advocacy
Access to hemophilia care and treatment in developing countries is an urgent public health challenge

Highlights of the WFH Humanitarian Aid ProgramPuntos destacados del Programa de Ayuda Humanitaria de la Federación Mundial de Hemofilia (FMH)

El número mínimo del factor de coagulación que un país requiere para evitar la muerte en los casos mortales es...
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Advocacy
What parents say—and don’t say—can make a big difference in how children handle their condition

Talking to Kids About Bleeding Disorders

Depending on when your child is diagnosed with a bleeding disorder, your first conversations with him or her about the...
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Family Matters
What parents say—and don’t say—can make a big difference in how children handle their condition

Hablar con los niños sobre los trastornos hemorrágicos

Dependiendo de cuándo se le haya diagnosticado un trastorno hemorrágico a su hijo, sus primeras conversaciones con él o ella...
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Family Matters
You can choose how much to tell your friends about your hemophilia or VWD

How Kids Tell Kids They Have a Bleeding Disorder

If you’re confused about whether to tell a new friend about your bleeding disorder, don’t worry, you’re not alone. It’s...
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HemAware Junior
You can choose how much to tell your friends about your hemophilia or VWD

Cómo decirles a los niños que tiene un trastorno hemorrágico

Si está indeciso sobre decirle a un nuevo amigo sobre su trastorno hemorrágico, no se preocupe, no está solo. Es...
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HemAware Junior
NHF Philanthropist of the Year: Gary Farro

NHF Philanthropist of the Year: Gary Farro

Farro works to raise money and awareness for people with bleeding disorders.
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Community in Action
NHF Philanthropist of the Year: Gary Farro

Filántropo de la FNH del año: Gary Farro

Gary Farro tuvo una visión. Farro, un Director General Senior y de relaciones en el First Republic Bank en la...
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Community in Action
The Hemophilia Memorial at the National AIDS Memorial Grove in Golden Gate Park opened in September 2017

Memorial Honors the Hemophilia Community Affected by AIDS

In 1990, Ryan White, an 18-year-old with hemophilia, passed away from AIDS. His mother, Jeanne White-Ginder, felt alone in her...
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Community in Action
The Hemophilia Memorial at the National AIDS Memorial Grove in Golden Gate Park opened in September 2017

El monumento honra a la comunidad hemofílica afectada con SIDA

En 1990, Ryan White, un joven hemofílico de 18 años murió de SIDA. Su madre, Jeanne White-Ginder se sentía sola...
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Community in Action
Women with von Willebrand disease (VWD) face unique challenges when they have a medical emergency

Advocating for Yourself in the ER with VWD

Women with von Willebrand disease (VWD) face unique challenges when they have a medical emergency
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Von Willebrand Disease
Women with von Willebrand disease (VWD) face unique challenges when they have a medical emergency

Defendiéndote a ti misma en la Sala de Emergencias cuando padeces EvW

En el mejor de los casos, la sala de emergencias puede resultar un lugar abrumador. Pero las mujeres a quienes...
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Von Willebrand Disease
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