Fall 2012
Up Front
Managing Surgical Risks in People with Inhibitors
Reconstructive surgery on people with hemophilia is more challenging because of the added need of assuring coagulation, the increased incidence of infection ...
To Your Health
FDA Launches New Pediatric Database
When it comes to drugs, children are not smaller versions of adults. That’s why rigorous testing of medications need to be performed ...
Hepatitis C Update
As baby boomers age, they’ll not only face arthritis, but the possibility of another “itis” with even greater consequence—hepatitis. In May 2012 ...
Financial Health
Healthcare Reform and You
The Affordable Care Act (ACA) expanded health coverage for uninsured Americans, while also taking steps to control health costs and improve the ...
NHF in Action
A Focus on Inhibitors
For people with hemophilia with inhibitors, managing their bleeding disorders can have unique challenges. Their immune system treats clotting factor as an ...
Genotyping Education at Washington Days
Attendees at the 2012 National Hemophilia Foundation’s (NHF) Washington Days event received training on advocacy before meeting with their elected officials. Afterward ...
HTC Funding Update
For the past three years, patients and their families at the National Hemophilia Foundation’s (NHF) Washington Days advocacy event have hammered home ...
Learning the Advocacy Ropes
Advocacy is important to people with bleeding disorders. Many chapters have advocacy days, where members visit the state capitol to educate legislators ...
NHF Establishes New Young Professionals Group
Connect for Bleeding Disorders is the National Hemophilia Foundation’s (NHF) new young professionals group, drawing people from various backgrounds. Members use their ...
NHF Walk Program Celebrates 5th Birthday
It has been five years since the National Hemophilia Foundation (NHF) launched its Hemophilia Walk program, starting with five walks, held in ...
Global Focus
Developing Nations to See Improved Care for Bleeding Disorders
Worldwide, an estimated 1 in 1,000 people have a bleeding disorder. But 75% receive either inadequate treatment or no treatment. In developed ...
Features
Immune Tolerance Induction Can Eliminate Inhibitors
A mother’s intuition can lead to the diagnosis of an inhibitor, an antibody to infused factor product concentrate. For Amanda Heisey, 34 ...
Joint Replacement Surgery in People with Inhibitors
Eric Lowe, 31, needed knee replacement surgery 10 years ago. The small-business owner from Noblesville, Indiana, has severe hemophilia A. He was ...
NHF Expands Online Offerings
Being diagnosed with a bleeding disorder can spark a lifetime of questions. As treatments, research, medical protocols and healthcare policy evolve, many ...
On the Move
High-tech Workout Devices
Update, October 2014: The US Consumer Product Safety Commission is requiring Fitbit Flex products to warn consumers about the incidence of allergic ...
Hemaware Jr.
Healthy Eating During the Holidays
Halloween, Thanksgiving, Christmas and Hanukkah. They’re just around the corner, and that means tasty treats and special meals that make your mouth ...
Women's Health
What Healthcare Reform Means for Women
The Affordable Care Act (ACA), which the Supreme Court upheld in June, has particular benefits for women, especially those who have bleeding ...
Spotlight
Ghost Hunting
In each issue of HemAware, we “Take 5” with people in the bleeding disorders community and spotlight their efforts with just ...