Search Stories | HemAware

Introducción a los inhibidores de la hemofilia

Gracias al uso generalizado del factor de coagulación, las personas con hemofilia hoy en día pueden llevar una vida mucho...

Hemophilia A&B, Von Willebrand Disease

Easy Ways to Cope with Wintertime Nosebleeds

Cold weather only heightens this common nuisance for people with bleeding disorders.

Taking Charge

Maneras sencillas de lidiar con las hemorragias nasales durante el invierno

Como bien saben las personas con trastornos hemorrágicos, el invierno es una temporada difícil para la nariz. En varias partes...

Taking Charge

Refrigerator for storing hemophilia factor

Safely Storing Factor at Home

Starting a home-care regimen for hemophilia and other bleeding disorders can be a life-changing experience for families. Self-infusion, prophylactically or...

Hemophilia A&B, Von Willebrand Disease, Family Matters

Hands putting puzzle pieces together to create a human head

Putting the Spotlight on Mental Health and Bleeding Disorders

Help is available both in the bleeding disorders community and beyond.

Taking Charge

Atención centrada en la salud mental y los trastornos hemorrágicos

Cuando se trata de la salud mental, el simple hecho de tener una enfermedad crónica, como un trastorno hemorrágico, pone...

Taking Charge

Needle Know-How

Shai,* now 8 years old, had been receiving almost-daily infusions of factor since he was diagnosed with an inhibitor at...

Family Matters

Todo sobre el uso de agujas

Shai*, de 8 años, recibe infusiones de factor casi a diario desde que se le diagnosticó un inhibidor a los...

Doctor with mom and little girl at a hemophilia treatment center

Hemophilia Treatment Centers 101

Lisa and Michael Louwers are both doctors, but the Farmington Hills, Michigan, couple didn’t know much about hemophilia or other...

Hemophilia A&B, Rare Bleeding Disorders, Von Willebrand Disease, Taking Charge, Advocacy

Breakthrough Bleeds Despite Regular Factor Infusions

Many parents of children with severe hemophilia rely on a formula that works most of the time: prophylaxis + other...

Hemophilia A&B

Woman floating in front of empty background

Addressing Product Safety for the Bleeding Disorders Community

Multistakeholder summit aims to improve education and communication

NBDF in Action

Abordaje de la seguridad de los productos para la comunidad de personas con trastornos hemorrágicos

La Fundación Nacional de Hemofilia (National Hemophilia Foundation, NHF) y la Federación Estadounidense de Hemofilia (Hemophilia Federation of America, HFA)...

NHF in Action