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A roundup of helpful books about hemophilia and other bleeding disorders

Los 7 libros de lectura obligada para pacientes recién diagnosticados y sus familiares

Si a usted o un ser querido le diagnostican un trastorno hemorrágico, la mejor medida a tomar es documentarse acerca...
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Family Matters
Myths or Facts graphics

5 Myths and Facts About von Willebrand Disease (VWD)

The most common bleeding disorder is one most people don't know.
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Von Willebrand Disease
Myths or Facts graphics

5 mitos y realidades acerca de la enfermedad de von Willebrand (VWD)

El trastorno hemorrágico más prevalente, la enfermedad de von Willebrand (VWD), afecta a más de 3 millones de estadounidenses, lo...
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Von Willebrand Disease
Chris Bombardier

Chris Bombardier: Reaching New Heights

How mountaineer Chris Bombardier persevered to become the first person with hemophilia to summit Mount Everest.
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Taking Charge, My Journey
Chris Bombardier

Chris Bombardier: Alcanzando nuevas alturas

Cómo el alpinista Chris Bombardier perseveró para convertirse en la primera persona con hemofilia en alcanzar la cumbre del Monte...
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Taking Charge, My Journey
The bleeding disorders community gathered in Chicago for NHF's 69th Annual Meeting in August 2017

2017 NHF Annual Meeting at a Glance

The National Hemophilia Foundation’s (NHF’s) 69th Annual Meeting in Chicago began with a message of unity. Reflecting on the battles...
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NBDF in Action
The bleeding disorders community gathered in Chicago for NHF's 69th Annual Meeting in August 2017

2017 NHF Un vistazo a la reunión anual

La 69° reunión anual de la Fundación Nacional de la Hemofilia (National Hemophilia Foundation, NHF), realizada en Chicago, comenzó con...
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NHF in Action
Asking for help if you get hurt at school is part of being a good student

Getting Help at School for Your Bleeding Disorder

When you’re at home and you get hurt or feel a bleed starting, you know to go to your parents...
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HemAware Junior
Asking for help if you get hurt at school is part of being a good student

Obtenga ayuda en la escuela para su trastorno hemorrágico

Cuando está en casa y se lastima o siente que comienza a sangrar, sabe que debe pedir ayuda a sus...
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HemAware Junior
Rare Disease Day 2018 - Wednesday, February 28

3 Ways to #ShowYourRare on Rare Disease Day 2018

On Wednesday, February 28, people all over the world will celebrate Rare Disease Day. EURORDIS, a nongovernmental alliance of organizations...
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Community in Action
Rare Disease Day 2018 - Wednesday, February 28

3 maneras de #ShowYourRare (mostrar su enfermedad rara) en el Día de las Enfermedades Raras, edición 2018

El miércoles, personas de todo el mundo celebrarán el Día de las Enfermedades Raras. EURORDIS, una alianza no gubernamental de...
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Community in Action
WHF's 50th anniversary video covers improved care efforts in West Africa

WFH's 50th Anniversary Video Series Documents History

The story of Saliou Diop, MD, is at the center of the World Federation of Hemophilia’s (WFH) newly released film...
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Community Pulse, Global Focus
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