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Gene Therapy for Hemophilia A: What You Need to Know
In the summer of 2023, the U.S. Food and Drug Administration (FDA) approved ROCTAVIAN (valoctocogene roxaparvovec-rvox), a gene therapy for...
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Blood Safety
Genoterapia para la hemofilia A: lo que debe saber
En el verano de 2023, la Administración de Medicamentos y Alimentos de los EE. UU. (Food and Drug Administration, FDA)...
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Blood Safety
How HIV/AIDS Affected the Bleeding Disorders Community
The National Bleeding Disorders Foundation (NBDF) celebrates its 75th anniversary in 2023. Throughout the year, HemAware.org will be commemorating this...
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75th Anniversary
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NBDF in Action
Cómo el VIH/sida afectó a la comunidad de los trastornos hemorrágicos
La Fundación Nacional de Trastornos Hemorrágicos (National Bleeding Disorders Foundation, NBDF) celebra su 75.º aniversario en 2023. A lo largo...
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75th Anniversary
,
NHF in Action
How the National Youth Leadership Institute Trains Tomorrow’s Leaders
The National Bleeding Disorders Foundation (N BDF ) has been celebrating its 75th anniversary in 2023. Throughout the year, HemAware.org...
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75th Anniversary
,
NBDF in Action
Cómo el Instituto Nacional para el Liderazgo Juvenil capacita a los líderes del futuro
La Fundación Nacional de Trastornos Hemorrágicos (National Bleeding Disorders Foundation, N BDF ) ha celebrado su 75.º aniversario en 2023...
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75th Anniversary
,
NHF in Action
What Is Therapeutic Phlebotomy?
Phlebotomy — the process of using a needle to remove blood from a vein — is an important tool for...
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Alternative Treatments
¿Qué es la flebotomía terapéutica?
La flebotomía (el uso de una aguja para extraer sangre de una vena) es una herramienta importante para diagnosticar y...
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Alternative Treatments
Voices for Change in the Bleeding Disorders Community
Joey Smiles: A Perfect Match When Joey Smiles, 44, was growing up in the 1980s and ’90s, treatment for hemophilia...
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Advocacy
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Community in Action
Voices for Change en la comunidad con trastornos hemorrágicos
Joey Smiles: una pareja perfecta Cuando Joey Smiles, de 44 años, crecía en las décadas de 1980 y 1990, el...
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Advocacy
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Community in Action
The Future of Digital Health
Roshni Kulkarni, M.D., recalls a time when a patient was attacked by a wild turkey and wanted advice about whether...
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Novel Technologies
El futuro de la salud digital
Roshni Kulkarni, M.D., recuerda una ocasión en la que un paciente fue atacado por un pavo salvaje y pidió consejo...
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Novel Technologies
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