Community-Voices

Community-Voices

People with blood or bleeding disorders and their family members are at the heart of the National Hemophilia Foundation. Read in-depth profiles and stories about people in the bleeding disorders community.

A woman walking outside in a bubble.

Afrontar la pandemia con un trastorno hemorrágico

La COVID-19 ha interrumpido las vidas de todos, incluidos los adultos jóvenes, que han tenido que afrontar clases y comienzos...
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Community in Action
A woman walking outside in a bubble.

Navigating the Pandemic with a Bleeding Disorder

COVID-19 has disrupted the lives of everyone, including young adults, who have had to navigate classes and commencements, weddings and...
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Community in Action
Nicole Kaes, member of the National Hemophilia Foundation’s Red Tie Runners, with her husband, Steve.

Correr por una causa: por qué una mujer se unió a Red Tie Runners de NHF

En el verano de 2019, mientras entrenaba para la maratón de la ciudad de New York, Nicole Kaes de Brooklyn...
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NHF in Action, Community in Action
Nicole Kaes, member of the National Hemophilia Foundation’s Red Tie Runners, with her husband, Steve.

Running for a Cause: Why One Woman Joined NHF’s Red Tie Runners

In the summer of 2019, while training for the New York City marathon, Nicole Kaes of Brooklyn, New York, woke...
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NHF in Action, Community in Action
Michael and Marilyn Tuberdyck

La nueva oportunidad de vida de Michael Tuberdyck

Michael Tuberdyck: Descubrí que tenía hepatitis C en algún momento de la década del 90, que contraje años antes por...
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My Journey
Michael and Marilyn Tuberdyck

One Man's New Lease on Life

Michael Tuberdyck: I found out I had hepatitis C sometime in the 1990s, which I contracted years before from tainted...
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My Journey
Morgan Hampton, author of Scar Tissue, a comic about his Uncle Rudi

Morgan Hampton: "Tuve suerte de crecer en la época en que crecí"

Siempre supe que tenía hemofilia, aun antes de saber qué era. Como es todo lo que siempre conocí, no hubo...
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My Journey
Morgan Hampton, author of Scar Tissue, a comic about his Uncle Rudi

Morgan Hampton: ‘I Was Lucky to Grow Up When I Did’

I’ve always known I had hemophilia, even before I knew what it was. Since it’s all I’ve ever known, there...
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My Journey
Carl Schwarz outdoors in Hawaii

Viviendo el sueño con mi trastorno hemorrágico

Crecí en Three Rivers, California, donde mis padres trabajaban para el Servicio de Parques Nacionales (National Park Service, NPS) en...
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My Journey
Carl Schwarz outdoors in Hawaii

Living the Dream with My Bleeding Disorder

"I use a huge array of skills, from helicopter usage to search-and-rescue techniques to how to capture bats."
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My Journey
Leighton and Shelley Easter at the gymnastics gym where Leighton trains.

El mensaje de una madre

Cuando mi hija Leighton, que ahora tiene 10 años, tenía aproximadamente 4 años comenzó a tener hemorragias nasales. Y no...
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My Journey
Leighton and Shelley Easter at the gymnastics gym where Leighton trains.

A Mother’s Message

"She’s learning to go for her dreams."
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My Journey
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