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Los hombres afroamericanos con hemofilia tienen una expectativa de vida menor que los hombres blancos
A principios del siglo XX, el promedio de expectativa de vida de una persona con hemofilia era de 13 años...
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Hemophilia A&B
Black Men with Hemophilia Have a Shorter Life Expectancy than White Men
In the early 1900s, the average life expectancy for someone with hemophilia was just 13 years. Developing the therapies that...
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Hemophilia A&B
Coverage Denied: The Growing Problem of Formulary Restrictions
For many years, Rodney Dalrymple, of Booneville, Mississippi, has managed his severe hemophilia A with a factor product that he...
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Advocacy
For People with Bleeding Disorders, Adherence Is Still a Problem
When Sean Pentz was growing up, his mother made sure he received his infusions of clotting factor three times a...
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Taking Charge
A Conversation with the BloodStream Podcast Co-Hosts
When Patrick James Lynch launched BloodStream in 2016, he sought to create something that didn’t yet exist: a podcast featuring...
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Community in Action
Encuentro con los copresentadores del pódcast BloodStream
Cuando Patrick James Lynch lanzó BloodStream en 2016, buscaba crear algo que aún no existía: un pódcast que presentara las...
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Community in Action
How PTSD Can Affect People with Hemophilia and Other Bleeding Disorders
Justin Levesque had no physical symptoms of hemophilia, but he still felt unwell. “I was just getting nauseous all the...
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Taking Charge
Cómo puede afectar el TEPT a las personas con hemofilia y otros trastornos hemorrágicos
Justin Levesque no tenía síntomas físicos de hemofilia, pero seguía sintiéndose mal. “Tenía náuseas todo el tiempo y me sentía...
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Taking Charge
Talking to Teens and Young Adults with Bleeding Disorders About Safer Sex
With abortion access restricted in many states and sexually transmitted infections (STIs) on the rise nationwide, having a conversation with...
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Family Matters
Hablar con adolescentes y adultos jóvenes con trastornos hemorrágicos sobre sexo seguro
Con el acceso al aborto restringido en muchos estados y el aumento de las enfermedades de transmisión sexual (ETS) en...
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Family Matters
Chapter Events for Women, Girls, and People with the Potential to Menstruate
Each year, hundreds of women, girls, and people with the potential to menstruate (WGPPM) who are affected by bleeding disorders...
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Chapter Roundup
Eventos de la sede para mujeres, niñas y personas con capacidad para menstruar
Cada año, cientos de mujeres, niñas y personas con capacidad para menstruar (WGPPM) afectadas por trastornos hemorrágicos se reúnen en...
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Chapter Roundup
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Need Information about Bleeding Disorders?
Contact The Neil Frick Resource Center (NFRC)
Contact NFRC