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2 Brothers Don’t Let Hemophilia Keep Them from Their Dreams
Twin Scouts with hemophilia tackle challenges and adventures, proving preparation and support can overcome physical limits.
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Hemophilia A&B
Community Heroes: NHF CEO Val D. Bias
When Val D. Bias became chief executive officer of the National Bleeding Disorders Foundation (NBDF) in 2008, he wasn’t just...
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Community in Action
,
Advocacy
Héroes de la comunidad: NHF CEO Val D. Bias
Cuando Val D. Bias se convirtió en director ejecutivo de la Fundación Nacional de Hemofilia (National Hemophilia Foundation, NHF) en...
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Community in Action
,
Advocacy
Honoring the Life of a Remarkable Young Man with Hemophilia
Growing up with severe hemophilia A in the 1970s and ’80s, Jason Fulton never let his diagnosis get in the...
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My Journey
En honor a la vida de un notable joven con hemofilia
Jason Fulton creció con hemofilia A grave en la década de 1970 y 1980 y nunca dejó que su diagnóstico...
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My Journey
Managing a Bleeding Disorder During a Pandemic: Answers to 6 Common Questions About COVID-19
As the world continues to grapple with the COVID-19 pandemic, the bleeding disorders community understandably has many questions about the...
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Taking Charge
Cómo tratar un trastorno hemorrágico durante una pandemia: respuesta para seis preguntas frecuentes sobre la COVID-19
Mientras el mundo continúa luchando contra la pandemia de la COVID-19, la comunidad con trastornos hemorrágicos sin duda tiene muchas...
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Taking Charge
Why Is Hemophilia Called the Royal Disease?
When it comes to the history of hemophilia, there’s a lot to unpack. The public didn’t even have a name...
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Hemophilia A&B
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Rare Bleeding Disorders
¿Por qué a la hemofilia le dicen la enfermedad de los reyes?
En la historia de la hemofilia, hay mucho por contar. La gente ni siquiera tuvo un nombre para la enfermedad...
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Hemophilia A&B
,
Rare Bleeding Disorders
Meet NBDF Staffer Nikole Scappe
Nikole Scappe came to work for the National Bleeding Disorders Foundation (NBDF) in April 2018 and today serves as its...
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Women's Bleeding Disorders
Conozca a una empleada de la NBDF, Nikole Scappe
Nikole Scappe comenzó a trabajar en la Fundación Nacional de Trastornos Hemorrágicos (NBDF, por sus siglas en inglés) en abril...
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Women's Bleeding Disorders
Hemophilia Inhibitors 101
Thanks to the widespread use of clotting factor, people with hemophilia today are able to live much more active and...
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Hemophilia A&B
,
Von Willebrand Disease
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