Search Stories | HemAware

Breakthrough Bleeds Despite Regular Factor Infusions

Many parents of children with severe hemophilia rely on a formula that works most of the time: prophylaxis + other...

Adoption Experience in the Bleeding Disorders Community

Adoption experiences in the bleeding disorders community are as rich and varied as the families themselves. Some parents affected by...

Family Matters

Grandparents Lighten the Load

They shoot hoops, teach kids the right way to do chores and bake homemade goodies to celebrate special occasions. And...

Family Matters

Pregnancy Planning and Bleeding Disorders

See Letters to the Editor in response to this article.

Carriers, Women's Bleeding Disorders

Weighty Matters

The patient weighed about 300 pounds, was 6 feet tall and had severe hemophilia A. His body mass index (BMI)...

Taking Charge

Two hands with faces drawn on the fingers

Opening Up About Mental Health

Talking about mental health isn’t easy.

Taking Charge

Participants at NHF's National Youth Leadership Institute (NYLI)

Lead On

Members of the National Hemophilia Foundation’s (NHF’s) National Youth Leadership Institute (NYLI) learned valuable leadership skills during a training program...

Generation Next, NBDF in Action

Apps for Kids

Bye-bye, board games—here come iPad and iPhone games. Nearly 75% of children age 8 and under have used a mobile...

Family Matters

A Balancing Act

Nine years ago, when Janet Patterson prepared to return to work after having her second baby boy, she worried. She...

Life, Family Matters

#HemoChat History

Social media has long been lauded for its ability to connect people with common interests, regardless of their location. When...

Advocacy

Home, Sweet Home, Alone

Now that your parents or grandparents are trusting you to stay home alone, you’re growing up! But if you feel...

HemAware Junior

Russians with hemophilia hiking a mountain

To Russia, With Love

When Yuri Zhulyov began his work with the bleeding disorders community in 1989, the number of people living with hemophilia...

Global Focus