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Gathering in Glasgow for the World Federation of Hemophilia World Congress

“The threat to the life of just one hemophiliac would be sufficient reason for us to travel to this meeting...

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Global Focus

Reunión en Glasgow para el Congreso Mundial de la Federación Mundial de Hemofilia

“La amenaza a la vida de un solo hemofílico sería motivo suficiente para que asistamos a esta reunión. Sin embargo...

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Global Focus

After Approval: Ensuring the Safety of Bleeding Disorders Medicines

Clinical trials provide important information about how well drugs and devices work and how safe they are, but they’re not...

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Advocacy, Community in Action

Después de la aprobación: Garantizar la seguridad de los medicamentos para trastornos hemorrágicos

Los ensayos clínicos brindan información importante sobre qué tan bien funcionan los medicamentos y dispositivos y qué tan seguros son...

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Advocacy, Community in Action

Young Bleeding Disorders Advocates Make a Difference

On March 7–9, 2018, hundreds of people from around the country converged on Washington, DC, for the National Hemophilia Foundation’s...

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Advocacy, Generation Next

Los jóvenes defensores de los trastornos hemorrágicos hacen la diferencia

Del 7 al 9 de marzo de 2018, cientos de personas de todo el país se reunieron en Washington, DC...

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Advocacy, Generation Next

NHF Inhibitor Education Summits Empower and Connect

Living with hemophilia with inhibitors is difficult. The inhibitor—a development of antibodies to infused factor product—makes it more difficult to...

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NBDF in Action

Las cumbres educativas sobre inhibidores de la NHF empoderan y conectan

Es difícil vivir con hemofilia con inhibidores. El inhibidor, desarrollo de anticuerpos para el producto de factor infundido, hace que...

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NHF in Action

Hacking Hemophilia

GroupMe. Facebook’s “like” button. Carousell. These are just a few of the innovations that have emerged out of hackathons—collaborative, intensive...

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NBDF in Action

Hackeo de la hemofilia

GroupMe. Botón “me gusta” de Facebook. Carousell. Estas son solo algunas de las innovaciones que surgieron de los “hackatones”: conferencias...

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NHF in Action

3 Key Challenges Ahead for Women With Bleeding Disorders

For a long time, it was thought that bleeding disorders occurred almost exclusively in men. Thanks to an increasing awareness...

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Women's Bleeding Disorders

3 desafíos claves futuros para las mujeres con trastornos hemorrágicos

Durante mucho tiempo, se pensó que los trastornos hemorrágicos se producían casi exclusivamente en los hombres. Gracias a una creciente...

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Women's Bleeding Disorders

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